Attached is a link to a series of six You Tube Videos from CurePSP from their Chicago Family Conference in June 2017. A good update. At the end of the first video of Alex Klein there is a link to a survey for those suffering from PSP. You can also get to the link through the CurePSP facebook page.
The link to the survey is 'is.gd/pspsurvey' Copy and paste it into your browser less the single quote marks.