The biggest problem I found every day is communication. Speaking is understood with a lot of difficulty and writing is very confusing.
The best results are obtained using Scrable letters and she is slowly forming phrases.
Does anyone know of a better solution?
Thank you
Luis
No sorry , maybe someone else may have some ideas xxxx
Have you looked at any type of communication boards? You can google it to get an idea.
Ron
A speech and language therapist may well be able to suggest appropriate aids. Plus encourage exercises to retain current communication or even improve slightly.
Tippy
A lot of posts on here about picture boards ,where you paste pictures of cups of tea ,toilets etc on a board and your partner points to them . I'm sure you will get a lot more replies .have you got your speech and swallowing team involved ?
I tried Scrabble type letters but unless used on a flat surface found that they slid about and would not stay in place (using a rough surface might have solved the problem) thus, the person reading them had to be more or less upright. My (PSP) wife's main position is mostly semi prone therfore I use a sheet of paper, write the alphabet on it in large letters Pat then spells out what she wants with a with a pointer, usually a pencil. Other advantages (1) no need of Srabble sets laying about and hunting for dropped pieces. (2) If patients eye sight poor letter can be written large. (3) Scrabble may not have sufficent letters of the same kind to make a complete sentences. (4) if tray/table move may have to start again.(5) scrap paper will suffice. Disadvantge, takes a while if patient's ability to move arm etc poor.
Hope this helps
Ivan
SALT are the best people for this if you are in the U.K. John has a speaking iPad which would be brilliant if he used it! Xx
Thank you.
There are loads of apps on the iPad that Steve was able to use for a short while. In the end we ended up with an A3 size white board, with magnetic large letters. At first he could write large letters, then started using the mag letters, finally, just use to point to the letter and I would make up the word for him. Apart from that it was thumbs up and down and pointing in the direction of the toilet. This is the worst part of PSP, my heart goes out to you, lots of patience pills are required. You will be surprised though, how much body language we all actually use in communication. The eyes say a million words, so I always knew what Steve was thinking, most of the time, I THINK I got it right.
Sending big hug and much love
Lots of love
Anne
If you use a tablet, computer, smart phone there is an app called Verbally that might be helpful. There is a free version and a paid version. Try the free version first to see if it is of any use.
Hi Luis, definitely get your Speech and Language Therapist involved. If you haven't got one ask your GP to refer you urgently. They can show you the aids available. The one W liked had a small keyboard with a small detachable screen that showed what he was typing or he could activate the voice on it. Good luck. Nanny857xx
The laminated pictures are something that we used with mum, but as cognition got worse we used a thumbs up or thumbs down action for a simple yes or no. This unfortunately didn't last very long as dystonia affected the hands and mum could no longer make the thumb action. We finally resorted to a squeeze of a hand for yes and nothing for no.
For us communication has been one of the saddest aspect of PSP. My mum can no longer communicate in any form. Cherish the time you have. All the best.
Thanks a lot
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