Charles has taken a turn, agitated (tearing diapers off at night), aggressive and choking. It's as if he isn't here with me anymore.! I'm so sad.
Hospice suggests a respite of 5 days for me and though I'm willing, I'm afraid he will go and let himself die there without me. Or they would help him along.
I could sleep there if needed but I'm not certain what I want to do.
Don't know if it's emininent but I'm so troubled I can't sleep. And of course keep crying.
Cuttercat
Take the respite your brain needs time to think...your body needs time to rejuvinate....and yes even if you are still with him...(tho I suggest you get away from PSP for awhile) you will have someone else there doing that which you must struggle with 24/7!
Take the respite
AVB
You poor dear! I am so upset for you, and pray that you will have clarity as you struggle with decisions. I want to go to you, but am keeping my 5 grandchildren. Two of my children and their families are moving to Thailand on July 26, and they are taking apart their homes and packing. But I CAN and WILL be praying for you and Charles. Big hugs, big bear hugs....
That's just the same as Keith, he got really agitated and wanted to tear anything off him that he could, I have to say, sleep there, be with with him as much as you can, I did and I have no regrets, I'm thinking of you, it's so so hard....Pat xx
It sounds as if you need respite. Perhaps you just need it to find some energy. Its so sad.
love, Jean x
I am so sorry to hear your news. I think you should let him go to the Hospice. As to whether you stay with him that depends on how you will get sleep. You must be exhausted? Ask them if he is dying as that will maybe help you make your decision?
When my husband ended up in hospital my daughter and I stayed with him during the day. My son stayed at night but I only let him do two nights and then I did the next one. Looking back it was hard going. Glad I did it though. Have you got any family that can help out? Is the Hospice far away? If not then you could go home to sleep?
They will take good care of him at the Hospice. You need to realise you can't care for him alone now? That is very difficult for you I know but you will end up ill if you are not careful.
Lots of love to you.
Marie x
You should take the retbite you need it, you could see him for a couple of hours every day xxxxx
Oh I am so sorry to hear this ... definitely take the respite ... sounds like you need it . You will think clearer after a good rest and tackle things differently .
Lots of love and warmth to you xx
So sorry to hear of this new challenge. The respite sounds a good plan. I know my ability to cope diminishes with the sleep deprivation. after a couple of nights sleep I can be more patient and calmer myself.
Could he possible have an infection causing this change?? If so the Hospice may be able to pick up on this.
Please take care sending you love and hugs xxxxxx
Definitely take the respite and get as much rest/sleep as you can in between your visits to see Charles. The Hospice I'm sure will take good care of him and would let you know if anything on toward was to happen. Thinking of you. Nanny857xx
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