@Patricia: Dear Patricia I saw your post... - PSP Association

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@Patricia

Kevin_1 profile image
22 Replies

Dear Patricia

I saw your post and there was no reply button.

Seems to be a Healthunlocked hair day!

Hugs to you, I am so sorry about Keith.

You have been wonderful on this thread and both of you are much cared about.

We are thinking about you.

Love

Liz and Kevin

XXX

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Kevin_1 profile image
Kevin_1
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22 Replies
Yvonneandgeorge profile image
Yvonneandgeorge

Pat also been thinking about you, hope you are ok? It has been a very hard time for some many in here, sending you all a big hug xxxxx

Patriciapmr profile image
Patriciapmr in reply toYvonneandgeorge

Thank you Yvonne, how are you and George?

Love and hugs....Pat xx

Yvonneandgeorge profile image
Yvonneandgeorge in reply toPatriciapmr

Pat we are ok, George is not to good. Been thinking of you big hugs coming your way. Yvonne ❤

Tillyhugs profile image
Tillyhugs

I am so sorry Patricia I couldn't find a reply button either. I feel so awful for you at this sad time.

Thinking of you and your family

Tillyhugs

Patriciapmr profile image
Patriciapmr in reply toTillyhugs

Thank you, it's good to know all you lovely people are here to give me support, I've never had to deal with anything as devastating as this, but it's good to know you're all there for me....

Love and hugs....Pat xx

Marie_14 profile image
Marie_14 in reply toPatriciapmr

Pat

I don't think I saw your post. Have hardly seen anything for a while now. Not sure why? Anyway glad you are still here. It is so hard to get through all of this. You have lots of friends here though. Thinking of you and everyone who has lost loved ones in the past couple of months.

Garry's funeral on Monday. Something I am dreading.

Marie x

Patriciapmr profile image
Patriciapmr in reply toMarie_14

Marie somehow you will find the strength to help you through it, if you are anything like I was it will all seem surreal, as though it's not really happening if you know what I mean?

I'll be thinking of you on Monday Marie..,,

Lots of love Pat xx

Marie_14 profile image
Marie_14 in reply toPatriciapmr

Life has been a bit like that Pat! However the bubble has gone. That gets you through a lot. So feel I am going to have to face it without any protection if you can understand that?

Thanks for thinking of me that means a lot.

Marie x

Heady profile image
Heady in reply toMarie_14

Hi Marie, I agree with Pat, it's so very surreal. My main advise is, pay attention, it goes so fast, listen to the service that you have planned, remember it's not only you feeling the loss of Garry, look around, see who is there and know that every single one of them is feeling the pain. Most of all they have your back. I can't tell you how comforting that is. This may sound macabre, try and enjoy the service.

Will be thinking of you.

Lots of love

Anne

Marie_14 profile image
Marie_14 in reply toHeady

Anne

There will be a lot of people there who I don't know. They knew Garry but certainly were not friends. I dread that and dread people who I know too but really are not friends. Then there are friends...few and far between sadly as most of them deserted us.

We only have a small family but it will be nice to see the ones who turn up. Garry has a lot of cousins but none of them are coming. That makes me very sad for him. My brother is coming from Spain but Garry's cousin who said she was coming and lives in Hertfordshire has now said she won't be coming! I honestly will never understand people you know? So I will go, and go through it, and to be honest the sooner it's all over the better. I will try to remember the prayers and hymns however, so you have given me some good advice Anne! I probably would have blanked it all out. I am out of that bubble now so no protection anymore.

Marie x

Cuttercat profile image
Cuttercat in reply toMarie_14

You never know who will be there to support you. It's NEVER who you think. I am gratified for the ones who have stuck it out and been there. I'll never forget. Some so called friends will come to "be seen" and the rest just let them go. Family will be what gets you through, though I don't have a big family either.

Hugs and warmest thoughts again.

Cuttercat

Cuttercat profile image
Cuttercat in reply toMarie_14

Oh Marie, I also dread it, hasn't happened yet but I go through it each and every night like a nightmare. I'll be thinking of you and praying.

Cuttercat

Marie_14 profile image
Marie_14 in reply toCuttercat

Cuttercat

Thank you. I need all the positive thoughts and prayers I can get.

My brother is here but decided to stay in a hotel for some odd reason. Anyway spent last evening with him and most of today. He has just gone back to his hotel. His wife died 3 years ago.

She had MS but also complications from surgery. He just showed me photographs he took of her legs. They were saying she had pressure sores. Then on her last stay in hospital he was told the problem was Vascular! You could actually see her bones as the flesh had disintegrated. I would have sued them but he hasn't got the energy to do it. It really upset me to see how she had been neglected. To make matters worse thgey tried to blame him! However she had nurses coming every day and went to see the consultant too! If I had the energy I would fight for him but we are both worn out and defeated to be honest.

So Monday I need strength. Thank you Cuttercat.

Marie x

Cuttercat profile image
Cuttercat in reply toMarie_14

Oh my, what a story. My husband is a nurse himself. Everyone talks about health care, but he says it's got nothing to do with health but insurance. They are totally separate things. Alas, money talks. I wouldn't try to sue either, we can never beat the system. Hugs to you and your brother, hang in there.

Love,

Cuttercat.

Kevin_1 profile image
Kevin_1 in reply toMarie_14

Marie,

This as well?

We wish you the strength you need.

Warmly

Kevin

xx

Cuttercat profile image
Cuttercat in reply toPatriciapmr

Boy you said it. Devastating it is!

Cuttercat

Patriciapmr profile image
Patriciapmr

Thank you both of you 😘😘

Patriciapmr profile image
Patriciapmr

Thank you both of you 😊😘

Kevin_1 profile image
Kevin_1

Patricia

There is nothing I can say...

Loosing your life partner is unbelievably hard.

There are no words of consolation.

We feel for you.

But, we get through... I've been there, something missing in my life forever... But its not the end... just living for two now.

This is clumsy.

Hugs to you

Kevin

xx

abirke profile image
abirke

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abirke profile image
abirke

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vlh4444 profile image
vlh4444

Dear Pat

I have only just seen your post too - Thanks Kevin. I think there are quite a few of us finding things very difficult alone. It is very early days Pat and people tell me it does get easier with time. I can only hope they're right!

Thinking of you 🌸

Vicki

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