Sharing a moment!: Hi, just thought you... - PSP Association

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Sharing a moment!

Heady profile image
51 Replies

Hi, just thought you would all appreciate this little story.

At the end of Steve's funeral, his grandson pipes up, "has anybody read the will yet?" We hadn't even pulled out of the Crem!!! Later it turned out that he wanted to know if his Grandad had left him his Ice Axe. What he thought was an axe was in fact was a grap rail, that helped Steve in and out of the car. His proper Ice Axe is 10 times bigger than what young Archie thought he wanted. (Steve was a rock climber)

It was his 12th birthday today, so between me and his father, we got Steve's axe, had it mounted on a rather large piece of wood, with a picture of Archie and Steve, taken a few years ago and got a little plaque with Steve's signature engraved on it. I gave it to him, saying it was from his grandfather, he looked at it and came and gave me a hug, but couldn't let go, he was so obviously sobbing, which set me off and his Mum and Dad!

This is a child that I thought didn't really know his grandfather, his father hid from the illness, therefore Steve didn't see much of them. How wrong was I? how wrong was Steve's son, keeping his son from his Grandfather? Children have a way of cutting through the crap and only seeing the things that matter. This young man certainly did, I really, really hope Steve was up there watching Archie tonight, treasuring receiving this precious gift from his Grandfather.

Lots of love

Anne

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Heady profile image
Heady
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51 Replies
Yvonneandgeorge profile image
Yvonneandgeorge

Anne such a lovely story, children are so unpredictable don't you just love them, I bet his dad is sorry now that he could not except his dad's illness, but hey ho life goes on. At least you can see it Ann, hope you are ok . Yvonne xxxx

Heady profile image
Heady in reply to Yvonneandgeorge

You are right Yvonne, life does go on, somehow I am grabbing hold of its coat tails and letting it pull me along. One day I will take control of my life again, until then I just with the flow.

Sending you big hug and am thinking of you.

Lots of love

Anne

Yvonneandgeorge profile image
Yvonneandgeorge in reply to Heady

Ann you are a very strong determined lady, you will come out the other side and Steve will always be by your side . Yvonne xxxxx

doglington profile image
doglington

Love it, Anne.

You're so right about children. We do them a dis-service keeping things from them. They do indeed cut through the crap.

What a sensitive gift from you. He will so treasure it and will remember grandad, the fearless climber.

Lots of love to you, Jean xx

Noella21 profile image
Noella21

How lovely! Yes children know how to cut through the crap and go right to the heart of the matter. Wish we could keep that through life. What a wonderful gift. Great idea mounting that axe and picture. What a thoughtful grandmother you are. Hugs.

PSPwife profile image
PSPwife

Love your story. Thank you.

Patriciapmr profile image
Patriciapmr

That's so lovely Anne, children certainly have a way of understanding the reality of everything, what a lovely gift to him from his grandad, I'm sure he'll treasure it all his life!

Love....Pat xx

Heady profile image
Heady in reply to Patriciapmr

Thanks Pat, how are you doing?

Lots of love

Anne

Patriciapmr profile image
Patriciapmr in reply to Heady

Not great Anne, it's really hitting me now, it's the finality of it all that's hurting the most as I'm sure you know.

How are you Anne?

Love and hugs.... Pat xx

Heady profile image
Heady in reply to Patriciapmr

About the same. Getting very bored with the whole silly business and want him to bound through the door demanding full attention and telling me to get a grip!

Lots of love

Anne

NannaB profile image
NannaB

What a lovely story. I'm sure grandad would be proud of his grandson.

XxxX

Georgepa profile image
Georgepa

Great stuff Anne . Steve would be proud of you too .

Auddonz profile image
Auddonz

Anne, Leave it to a child. I know my grand children are extremely upset about loosing their Poppa. They don't say much to me but my Daughter sees it more than I do. Don always said that he wanted our Daughters son to have a ring that belonged to his father. My Daughter said not yet, he is to young and it will only upset him more. Children are funny, they each show their feelings in different ways. You are so right. Stay strong, my heart goes out to you.

HUGS AND LOVE,

AUDREY

abirke profile image
abirke in reply to Auddonz

When our foster grandson first came to us , Bruce was pretty much into the throes of PSP. He was just beginning to choke on food. But still they ate pizza and ice cream.....and there was actually a few times he told the boy to "pipe down" the common dad term with loud kids. the first thing the boy does when he comes in the house is give grandpa a hug.....There was one time when he wasn't sure if he was going to get grandpas sickness by hugging him. After a talk that grandpa can't make anyone else sick he just shrugged his shoulders gave grandpa a big hug and asked if he could go out and play now as if he'd been waiting patiently for me to stop yakking.. :)

He is here with us now hanging out with grandpa....watching us take care of him hearing the happy memories seeing the tears.....He is taking it all in stride .He may be a bit acting out...but he hasn't been home except once this week and that is hard on everyone!

AVB

Auddonz profile image
Auddonz in reply to abirke

How old is he? I am going to bed now. Will talk in the morning.

Love,

Audrey

abirke profile image
abirke in reply to Auddonz

He is 8. We do not try to force any of this down him. It's just the natrual course of life

Heady profile image
Heady in reply to abirke

Hi Andrea, yes this is very hard. I hope you are taking plenty of rest, I spent a lot of time cuddled up to Steve asleep.

Lots of love

Anne

Heady profile image
Heady in reply to Auddonz

Thanks Audrey. We felt this was a good way of giving him the Ice Axe now, rather than waiting until he was old enough to receive an extremely dangerous tool. Dread to think the state of his bedroom, if he had access to it now!!!

How are you?

Lots of love

Anne

Auddonz profile image
Auddonz in reply to Heady

Anne, It was a very smart thing to do. My daughter and two of my grands came over to pack and donate Don's clothes. I found it very interesting that my grand son took a lot of his shirts. They are very big for him now but he wanted them, so who am I to argue. I was very touched. I still am coughing my head off and very tired. I am thinking that I might go to the Doc this week. I just hate going myself.

Lots of love and hugs back,

AUDREY

Heady profile image
Heady in reply to Auddonz

Hi, you're brave! Haven't even thought about Steve's clothes yet. I have got rid of all the equipment, that went straight away. All his brand new Christmas gifts I gave to suitable people. Medicines went next and a few little items like the ice axe.

Thinking my wardrobe could do with a serious cull next, haven't got anything decent to wear, not had anywhere to go in recent years. So perhaps I will do Steve's as well. But that's not going to happen for a while yet.

Funny, I've got a niggling cough as well. I am just presuming it goes with the blocked sinuses and constant sore throat and eyes that pour with water, given half a chance!

Big hugs

Lots of love

Anne

Auddonz profile image
Auddonz in reply to Heady

Anne, Doing his clothes only made me cry more but I waited until the kids left. My daughter just came over yesterday and said we have to. Truthfully I was far from ready and I kept a lot of his shirts for myself. Our daughter was here earlier today with a few things I needed from the market and she was wearing one of his shirts she took. I am thinking it made her feel better but she told me she was watching a show this week where the leading character lost her father. She said she lost it completely. I talk to him morning and night. I hope I am not sick since I feel so freakin weak along with the cough, sniffles, and sneezing. Thinking I should go to the Doc but trying not to. Going back to bed. Head is hurting as well. I am a mess. BTW, did I mention I sold the house?

Big hugs back and lot of love,

Audrey

Debbieann profile image
Debbieann in reply to Auddonz

It's very slow progress, sorting his stuff, when I'm in the mood for tackling it, I sort a couple of items, then start crying, and that's the end of it until I'm in the mood again

Debbie xx

Auddonz profile image
Auddonz in reply to Debbieann

Debbie, Right there with you. I am gong to pack a special box for him, when I have the strength to do it. In it will go his personal things, like his telephone book, guess that sounds silly and I don't know what else. I so wish I had a tape of his voice. When he was in rehab and would call me and I couldn't answer the phone, I didn't delete them until he got home. I wish I never had deleted any of them. Just to hear his voice again. :(

Audrey xoxo

doglington profile image
doglington in reply to Auddonz

I have videos I took of holidays and at the end we each talked about the holiday. I wish I'd done more Its a great reminder of how he was when relaxed.

Didn't realise how important they would be.

Jean xxx

Auddonz profile image
Auddonz in reply to doglington

Your very lucky to have them Jean

Heady profile image
Heady in reply to Auddonz

I have loads of videos that Steve took on our travels. Haven't dared to look at any yet. He kept up a running commentary on all of them. I did try to get Steve to watch them, not long before he died, but I think by then it was all too painful for him and in fairness me as well. One day! one day!

Lots of love

Anne

doglington profile image
doglington in reply to Heady

It is painful. It also brings in reality. I did all the filming but occasionally allowed Chris to do it so I am in them too. Unfortunately these bits have a lot of me saying, " turn it off. you haven't turned it off !" and then us bickering as the picture wobbles.

The kids love these bits so I didn't edit them out. Brings back memories - - -

Love, Jean

Auddonz profile image
Auddonz in reply to doglington

Jean, Very rarely traveled didn't think that some day something like filming would mean so much to me. Just have photos and not much of those either since Don never liked to take them :(

Love,

Audrey

Auddonz profile image
Auddonz in reply to Heady

Anne, We rarely traveled, so all I have are photos. It hurts so much :(

Love back,

Audrey

abirke profile image
abirke

So true Heady. Children really do know how to cut through the crap and if given the opportunity will be resilient through the tough times like death ...

So Steve was a climber? cool! Bruce did some climbing but was more inclined to the easy paths of hiking .....NW Arkansas is a great place to weekend hikes or family day outings He and the kids usually found a dry waterfall to traverse...wow I am so glad Archie got to have a special memory ...this might spawn a love for climbing like his grandad had....

AVB

The innocents and the truthfulness of children are wonderful, they are truly much more aware then we ever give them credit for.

Thanks for sharing.

Dee in BC

Tillyhugs profile image
Tillyhugs

How long belt I'm sure Archie will treasure that moment

Hugsx

Tillyhugs profile image
Tillyhugs in reply to Tillyhugs

That was how lovely not long belt

Spiralsparkle profile image
Spiralsparkle

What a beautiful moment for you to treasure, albeit also sad remembering Steve. It made me well up.

Xx

millywigg2 profile image
millywigg2

How sweet Anne.Hope you are ok xxxx

Heady profile image
Heady in reply to millywigg2

Thanks. I am surviving, still very much day to day existence.

Lots of love

Anne

Katiebow profile image
Katiebow

Anne that is such a touching and brilliant story and I agree that children do see through things and shouldn't be protecting from seeing their grannny or grandad just because they are ill. Billy our oldest grandson was on his Grumps's knee in the recliner/ riser chair, when I went in the room their was poor Ben just about tipped out of the chair with Billy clinging on to the arms trying not to fall off of his knee. Note to self don't let a 3 yr old loose with remote control. I know Billy really loves his grumps and makes a beeline for him, I can see him puzzling things out but he isn't phased by Ben's illness and just accepts things as they are. I'm so pleased that you now have this lovely memory to keep and are now reassured that Archie really did love and respect his grandad, I too hope that Steve is watching and feeling proud .

Love Kate xx

Heady profile image
Heady in reply to Katiebow

That's something Archie never did! He constantly fiddles with everything and was always playing with Steve's chair, but for some reason, not with Grandad in it!

Lots of love

Anne

Satt2015 profile image
Satt2015

Thank you for sharing this beautiful post Anne! And I couldn't agree more, children don't see things as we do and are very flexible and adjustable! Simply adorable! Archie sounds an absolute delight! X

Heady profile image
Heady in reply to Satt2015

Yes he is. The apple of his Grandad's eye! Whether he will turn into Kevin on his 13th birthday, who knows. Hope not!

Lots of love

Anne

NanBabs profile image
NanBabs

What a lovely story.

Our youngest grandson is 10 and used to play cars with P and now when he goes home after a visit he always goes back to give his granddad another kiss, without being prompted in any way. I used to think that he was too young to remember when they played together, but I was wrong. I am glad he has happier memories of earlier times than these recent years.

xx

Kylie4951 profile image
Kylie4951

Omgoodness that was special Anne! Thank you for sharing. And OF COURSE Steve was watching and helping you put that gift together. But as for your son.,. There can be no regrets .... no regrets. He did what he thought was right. Your grandson was able to get his grief out and that was good. But there can be no regrets. Not now.

God bless

Sue

Heady profile image
Heady in reply to Kylie4951

Thank you! You are right, no regrets. I use to be very angry about this, but now... It's all too late isn't it.

Lots of love

Anne

Kylie4951 profile image
Kylie4951 in reply to Heady

I find that now that Bill is gone I have settled into a quiet place. Anger is not as much a part of me. It is just not worth it. I find that I am excusing people. I am Catholic and this is the year of mercy. Not sure if that had anything to do with it but I often feel Bills hand on my shoulder when I jump to react. Reconciliation seems to be more worth it now. We don't know how much time we have left in this world, look how young our husbands were. I think Bill is trying to calm me now to relax and enjoy and smile and love. I am just so very sad that I did not adopt this demeanor while he was still with me. Miss him a lot today. Sorry !

Have a good day.

Sue

Heady profile image
Heady

Hi Sue, Steve use to try and calm me down, when I got very stressed, like you, I wish I had listened more. But as you said, No Regrets!

I am starting to miss him more now, although I still can't get past the illness, perhaps it is proving my point, he had PSP for many, many years.

Sending you very large hug and much love.

Lots of love

Anne

Tugun profile image
Tugun

You made me cry! Lovely story.

Pagesofwords profile image
Pagesofwords

How touching to hear this story. Love runs deep and knows no age.

easterncedar profile image
easterncedar

Just saw this, Heady. It fogged up my screen, somehow. Thanks for sharing. Love, Ec

Heady profile image
Heady in reply to easterncedar

Everything alright? You have been a bit quiet recently.

Sending hugs and love

Lots of love

Anne

easterncedar profile image
easterncedar in reply to Heady

Thanks, Heady. My guy and I are all right; it's everyone around us that seems to be really suffering. I was away to be with my sister and the family who could gather; my brother-in-law went to the hospital with the flu two weeks ago and it turns out he has lymphoma and is not expected to survive the week. It's really sad - and the ICU nurses are shockingly irrational and cruel. I have never seen such consistently rotten behavior in my life. It has made it all so much more horrible than it needed to be.

My guy was, on the other hand, taken care of cheerfully and lovingly and intelligently and well at the local veterans hospital while I was away. I adore those women one and all.

So glad to be home again. Love to you and all, Ec

Heady profile image
Heady

That's awful. I am so sorry. My thoughts are with your sister at this terrible time for her.

Lots of love

Anne

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