Went to the cancer clinic on Wed. My cancer has progressed from my T6 vertabrae to my C2 . Must go back every 3 months or call if pain gets worse or I loose feeling in arms legs or anything unusual happens. I am not having any more exteme measures taken. Comfort only. It is matter of seeing who goes first R or me. We will take each day as it comes. I want us to stay at home if at all possible. I have to prepare my kids who think I am super woman. Keep us in your prayers.
You are both in my prayers.
Noella, I can't begin to imagine being in your situation. I knew from various posts that you had something wrong with you but no idea it was so serious.
I do hope you have good help sufficient to keep you both in your own home.
I'm not the praying kind , can do no more than think of you and send hugs.
Rx
Noella, I have seen amazing courage and devotion in this community, but what you are doing is beyond this ordinary sort of heroism. That you were fighting so to care for your husband all this time, never speaking of yourself, oh, I haven't the words. Your children aren't alone in thinking you are super woman. I do hope you can take off the boots and cape at least now and then, and that you get some more help. Love and peace and hope, Easterncedar
It is strange how your perspective is affected by being aware that you have a terminal illness. I really appreciated being able to care for others I think it is what has kept me going. I will continue to do so as long as I can. It is what I do best.Thanks for your kind words.
Thinking of you both xx
You and your family are in my prayers.
You are an amazing lady, you are in our prayers, sending you a massive hug. Yvonne xxxxx
Thinking of you both. Its a hard road and I am full of admiration for your courage.
Lots of love, Jean xx
I am lost for words but am thinking of you xx
Love and prayers from me too, you lovely lady. God bless. X
Omg that is soo tough, in my prayers and thoughts . Gid blesd
Noella I am sitting and reading and crying for you.....Let your family know and let them know it all. I spoke with a chaplain who made sense that it's important to tell family all that's happening do not shelter the patient do not shelter the kids but tell them what you would want to be told......just talk to them,...They'll understand more than you know cuz you are a super woman and love you and want to understand...
love you
AVB
Oh Noella, I am so upset for you. This is when I have problems with God! I will still pray to him but why, why, why? You have to tell your family. You are superwoman but time to hang the costume up now and let others take over. If nobody can or will then think of yourself and R. Go into a Care Home with him and then however long you both have you can spend it together.
My love to you dear lady and a great big hug. I will say those prayers because I don't know what else to do for you, apart from being here for you always.
Marie x
Thank you Marie. I try not ask questions there are no answers for. It makes you nuts. On the other hand why not me? Better people have had terrible lives. I am grateful for each day and the wonderful family I have. I lost my only sibling from a brain tumor at 27 she had two small children and was pregnant with her third. It was the worst of times it was the best of times. So many people supported us . When her baby was nine months old my sister died. I learned a lot about courage human kindness and myself during those difficult times. The children all grew up to be wonderful people. The baby became a high school teacher. How proud she would have been. He touches so many lives Never will she regret to have bought him time by waiting till he was born to start treatment. Their dad married again and had 2 more children. Those kids are all close. They all have children of their own now. It will be all right. The world goes on. God is still good. He can turn things for good even in this tops turvy broken world . We all have to die sooner or later . Loosing faith is much sadder than loosing your life.
Thanks for yor kind words. No need to feel sorry for me I just wanted to give you all a heads up in case you suddenly stop hearing from me .
Thinking of you both. Do be honest with your family you need all the love and support you can get.
Take care and do be gentle on yourself even if you are super woman Love and hugs xxxx
You are truly an amazing and the strongest woman I have ever know. You go beyond super woman. I'm sending huge (((((Hugs))))) and prayers to you both. God bless you and your family
Gracie girl ( Becky)
This post is so difficult to read knowing you have been caring for R when you to are suffer from a terrible illness. I am full of admiration for you and can fully understand why you gave chosen to refuse treatment. I hope that you both manage to find a route that will let you be together as you take this heroic journey.
Love Kate xxx
Noella you are truly one amazing woman, keeping you and R in my prayers. Lots of love Nanny857xx
How do other carers deal with the "difficult" days?
The Other Man
Carrying the Olympic Torch for PSP.
WHAT I AM NOT LOOKING FORWARD TO IN THE UK
