A misunderstanding.....: I'm so sorry for... - PSP Association

PSP Association

9,372 members11,414 posts

A misunderstanding.....

Katet68 profile image
8 Replies

I'm so sorry for those who are now worrying about Dad & I thinking that Mum has left us......she is still with us in body & a little in mind.

For me the grieving is happening now, whilst she's still alive, the loss I feel everyday is huge so god knows what it'll be like when she's actually gone?

Sorry if I didn't communicate very well, was feeling totally overwhelmed & emotional xx

Written by
Katet68 profile image
Katet68
To view profiles and participate in discussions please or .
8 Replies
NannaB profile image
NannaB

Hi Kate, it's so tough isn't it. You are grieving now. I grieved for six years. Don't worry now about what it will be like when your mum has gone. You may be surprised. You may feel a huge sense of relief that she is no longer suffering and if you don't feel like that, you'll find a way through. Your dad will be grieving now as well and he is truly blessed to have a daughter who supports him.

All you can do now is support them both as much as you can and tell them you love them often. Your mum is still in that weakened body and probably hears and understands everything you say so keep talking to her normally, sharing memories. Laugh with your dad when you are together. She'll want to know you will both be OK when she has left you.

Sending you a big hug and don't worry about the future, there will be time enough for that when it comes.

❤ XxxX

PSPwife profile image
PSPwife

I too, feel the grieving is throughout the whole process. Remember to allow yourself to grieve from time to time. It's the only way we can find the strength to keep on.

easterncedar profile image
easterncedar

A warm hug, Kate. It's awful to lose a parent as you are losing your mother. It's good you and your father have each other. I loved his recent story of your mother bravely out-facing the hunt and saving the fox. Wishing you the comfort of good memories and never-ending love, ec

Hi Kate I just wanted to let you know that you are not alone. I know exactly how you feel in that I am also grieving for my beautiful mother who is battling CBD. It is truly heartbreaking and like you I also sometimes feel totally overwhelmed with emotion. My Dad is struggling too and my sister as my Mum goes into the advanced stages of this awful disease. Sending you a big hug and remember that we are here for each other. Martina xx

doglington profile image
doglington

Another hug, Kate

love, Jean x

MaddyS profile image
MaddyS

Hi Kate. Nanna Bev said it exactly as it is. love Maddy xx

mamaw1965 profile image
mamaw1965

I too grieve for my Mom everyday and she is still here with us...

Katiebow profile image
Katiebow

Dear Kate, you certainly are grieving at losing your mum bit by bit and it is so so hard to deal with. During my counselling sessions I discussed this sense of loss and my counsellor explained that it is called 'anticipatory grieving' and is what you would expect to happen when a loved one has one if these horrible neurological diseases that gradually robs them of almost everything and you feel this too. My heart goes out to you all.

Love Kate xx

You may also like...

CHC first checklist assessment

for extra help now so really want to get through this in the best way possible. My Mum has CBD...

Thank you from the bottom of our hearts and good news

some of the posts to Liz today - She is still very aware and still with us. I am doing short visits...

Update on Prof Morris appointment

see P being able to work much longer. We are still feel in limbo. But after talking to other young...

Covered medical costs in the US

downer, but I feel it is so important for John to have a say in things while he still can. My...

Feel like running away.

her so much but it's like she is a stranger. It feels like my mum is long gone. It's just another...