PSP Association
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I'm home!

I'm home!

We made it! 6 widows survived a 3 night trip to Budapest and it was amazing. After very busy days seeing the sights, relaxing in the hot spa, drinking huge soup bowls of mulled wine, whizzing around the city on the metro, buses and trams, we relaxed in the hotel with a glass or two of wine and laughed about things that had happened during the day, like when one got on the metro as it left the station leaving the rest of us standing on the platform. We found her a few stations along.

I would have loved it if I was with Colin instead but he came with me in my heart and I had a little weep in a church where I lit a candle for him, but there was definitely more laughter than tears and sharing a room meant lots of happy talk in the dark before falling asleep.

I toasted you all many times......we had many drinks, and you will continue to be in my thoughts and prayers.

Lots of love

XxxX

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Oh, so happy to hear it, NannaB! I've been thinking about you. Now I want to go there even more!

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ditto!

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Me too! Hey we US caregivers all ought to do what NannaB and friends did and celebrate with some fun travel! Out of state, or even out of country...wheres my ticket!

;)

AVB

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Sign me up!!!

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That's really fantastic news NannaB. Life will be kind to you and your family, some days touched with sadness, Colin will be in your heart always. Go easy on yourself, don't try to run before you can walk. Lol jingles 243

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WOW looks like an amazing adventure I am sure you had all the love and support from your dear friends...cheers to you all

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Dear Bev, the pickie looks wonderful. We visited some years ago, but mid summer. So glad you had a good time. Of course Colin was with you, in your heart, where else would he be. looking forward to hearing about your next adventure.

Lots of love

Heady

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Bev I sat here with a big smile on my face, so happy you had a lovely time, of course Colin was with you all the time, watching you smile, seeing you enjoy yourself, I am sure he was very happy, sending you a massive hug Yvonne xxxx

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Lovely photo.

Sounds exactly what you needed. Colin would be proud of you.

Lots of love, Jean and Chris xxxx

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How lovely to read this cheery report about you and the 5 others with whom you ventured forth. I know you are all trying to cope with grief but you seem to have such a positive attitude; it was super to read: I am the one with PSP (still fairly early stages) so I read out your post to my husband who is my career.

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Nannab I've just read your post and not the replies yet! You are simply amazing an and absolute inspiration to us all! I'm simply delighted that you had a wonderful time and hope that you have many more trips with your friends! Colin will be looking down at you, saying go on girl, you have fun! X

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Welcome home....I have thought of you everyday with warm and happy thoughts I am glad you came home with the same! It looks like they are celebrating the Christmas season in your picture. Forgive my ignorance, but is that what the lighting is for there?

((HUGS))

AVB

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Yes AVB, we went for the Christmas market and it was well worth visiting. Many streets were decorated in a similar fashion.

Take care.

XxxX

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You so deserved that NannaB....so pleased that you had a lovely time despite your heartache X

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Go girl go .Live life to the full NannaB you deserve every moment .

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So good to hear. Big happy smiles from here.

Love

Kevin

XXX

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So pleased you enjoyed yourself with your friends Bev and I'm sure Colin is watching over you and is happy to see you smile!

Love and big hugs....Pat xx

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Sounds as if you had a wonderful time Bev with Colin perched on your shoulder permitting you to enjoy yourself. I hope the shared room arrangements went well and no funny habits revealed by either of you! Look forward to meeting up and hearing all about it.

Love Kate xxx

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Yes Kate, hope to see you soon but I promise I won't bore you too many holiday photos.

XxxX

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Hello NannaB/Bev. I'm so pleased that you had a good few days away. Colin will always be with you wherever you go. Raising my glass, cheers ! Wishing you all the very best for the future. Love Madfy 🍷

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Glad you enjoyed the trip, and as you said C was with you in spirit still. Budapest is a great city in summer (choir trip 4 yr ago) but in winter it is cold but the mulled wine and shops compensates. Really happy you are getting your life back.

Tim

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i AGREE iwthj what has been said bev

ll jill

xxxx

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Thanks Jill XxxX

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Jill, so glad to see your post. How are you faring these days?

Well wishes,

Jayne ((GC)

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How wonderful. Nana I hope this just the first of many adventures you will have. You ladies appear to my kind of people. I continue to fight against beauracy . I have more at stake and am willing to die for the cause if it comes to that. I will continue to make life so difficult for them that they wear down .God bless you. Merry Christmas and prosperous New Year with many new adventures. Hugs .

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Thanks Noella21. I hope you don't have to fight too hard before you see the results.

God bless you too.

x

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hji nasnna its glad to have you back though nnt for you I suppose that sounds nice your wine in a soup bowl mate that's more your buck mate I'm sure cvolin was with you anyway mate making sure you never had to much wine in your soup bowl try a bucket next time matey it holds more looks a very nice place I'm glad you enjoyed it peter jones q.l.d. australia

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A bucket sounds good Peter Jones but I had a job to walk straight after a soup bowl full.

Take care.

XxxX

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Great to have such a happy post from you. Sounds like you all really enjoyed the time together. X

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Oh NannaB I am so glad you had a lovely time. I too have 6 fantastic friends and there is nothing like friends to help you through the tough times and to bring back the laughter. I think Colin would have been laughing with you and your friends antics. Take care lots of love xxx

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Nana, I just read this as I have been away from this site for awhile. What a wonderful excursion! Wish I had come along:)

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That would have been good. I haven't done any of the decorating I intended doing as I've booked 7 holidays this year. I recently returned from Ireland, a coach trip, sharing a hotel room with someone I'd only met a couple of times. Talking into the early hours took me back to my childhood sleepovers but this time the midnight feasts included wine.

How are you doing? OK I hope.

It was good to hear from you. Take care.

XxxX

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My sort of midnight feasts!!!

Lots of love

Anne

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You may not check this site now, but in case you do I want to message you before I leave the site. I haven't looked at posts until today since my father died in January 2015. Can I send you my very best wishes and sympathy as you adjust to this new phase of your life now that Colin has finished his struggles with PSP. I found your posts so encouraging while my father was deteriorating, thank you for your helpful responses.

After my dad's death his brain was donated to Queens Square for research and they found that he didn't in fact have PSP, but Alzheimers, Vascular and Louis Body Dementias. That didn't make any difference to his symptoms or care though and the support I had from members of this site was very helpful. I am grateful.

Very best wishes to you and all the members of this site,

Morag.

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Hello Morag,

It's good to hear from you. I hope you have managed to find happiness after The loss of your father.

I can't believe Colin left me 11 months ago. Where does the time go? I decided that I am going to make the most of every day, life is so precious and fragile. Since my trip to Budapest I have also visited Ireland, Canada, Paris, the Cotswolds and Suffolk, where my son lives. Next week I'm going on a walking holidays in South Wales and in December I am going to Australia and Thailand.

I think next year I'll start decorating as the house is as it was when Colin left me; battered door frames and skirting boards and chipped paint throughout, the result of carers caring for Colin but not he house.

At the moment I am organising the U3A Christmas lunch for 120. Caterers and entertainment booked and I'm now collecting deposits.

I still have a few wobbles but they don't last long and I still talk to Colin and let him know what I'm doing. During the last couple of years of his life he never spoke to me so it's not much different.

I still check in here regularly so I can see how those I "know" are getting on.

I wish you all the best and hope you are enjoying life.

Lots of love

Bev aka Nanna B

XxxX

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That's wonderful, you've really got the right idea, well done you. We'll always be thinking of them. I'm also throwing myself into lots of things at the moment and so enjoying being able to do so as I've been going through treatment for breast cancer over the last year after finding a tiny dent where didn't have one before! I'm through all the major stuff, feeling great and enjoying having hair again - even though it's crazy curly now, never had that before! I really appreciate being able to go walking and to my fitness class, do the garden, be involved with church things again, look after the grand children and be able to go away whenever we can. I have so many blessings to enjoy - as you do.

With love,

Morag

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Wow! You have been through so much. May you stay health from now on.

Take care.

May God bless you richly.

XxxX

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