DenB do you know there is,a support group on Healthunlocked.com? People from all over join it mainly UK and US however. It is also for anyone with any neurodegenerative condition. It started as a PSP site but everyone is welcome. There are great tips about CHC funding and just general care. Everyone is very welcoming. There are a few people with CBD on the site and carers too. Well worth a look.
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