I have been delaying posting on here for a while as posting on her is admitting that PSP is happening and it isn't going away!!
My dad was diagnosed with PSP a couple of years ago and has had periods of substantial deterioration and then stabilises. My mum is his primary carer and my dad is adamant that he doesn't need respite as all of his needs are being met.... which they are, but my mum is exhausted and I know that we are still at the beginning of a very long and hard journey.
My dad doesn't seem to have any appreciation of the risky situations that he places himself in, he still wants to be independent and has regular falls, resulting in regular visits to A and E to stitch him back up. So the things I suppose I am wondering is, have other people had similar experiences and if so is it just a case of waiting until his mobility deteriorates even further so he becomes housebound?
PSP is amongst some of the cruellest diseases that exist and my thoughts go out to every other person accessing this site as it is a life changer...
Thanks in advance for listening/reading and any responses I receive