Sister with PSP

[casnos]

My sister has PSP and lives on the east coast. I live on the west coast. I want to learn more about what is happening and what will be happening to her. Thank you for being there.

[abirke]

I live right between the both of you, in AR! The best site is CurePSP.org. They will send you a packet of info that you can share with others .  it also has a caregiver talk group.  I never could get on it though.  If your sister does not have a good PSP support network, send her to this site. It will help her understand what is going on...

Goodluck and Godspeed to you and your sister.

AVB

[Hidden]

Hi and Bkessed Holiday.,where r u located?

[Hidden]

There is no cure for pap as u know my wife passed away on the 1st February this year and to see her suffer near the end broke my heart I didn't let my wife go into a home I wanted to be with her all the time going into a home without any love ones with her I didn't want that now that she has gone she is no longer in any pain from all the falls she had and that she is at peace so give your love all the u can give them george