Difficulties with psp

[787878]

What medications are given generally to the patients suffering from psp in the final stage ?

[Yvonneandgeorge]

George had a syringe driver and morphine xxx

[easterncedar]

I gave my guy morphine with an eye dropper under his tongue when he seemed to be in pain at the end. He had decided to refuse food at that point. Before that he had some benzodiazepine to help him sleep. Also, for the last year, atropine eyedrops under his tongue for the choking.

[Dadshelper]

Dad had morphine as needed and oxygen.

Ron

[NannaB]

My husband wasn’t on any medication at all. A syringe driver for morphine had been delivered for if he needed it but it was thumbs down when I asked him if he did so it was never fitted.

XxxX

[doglington]

We had the same experience as NannaB

He never needed pain relief. We had all the medications to hand but he was calm.

X

[ketchupman]

Hospice provided the morphine in an eye dropper to put under her tongue. Only did that a few times. Her final days were in the hospital. We ultimately stopped giving her anything via the feeding tube and stopped all meds. They had an IV in her to give her glucose. And they routinely administered morphine and Ativan, especially when she seemed in distress. My wife had developed aspiration pneumonia and her right lung was totally clogged and antibiotics were not helping. Once her oxygen level slipped below 60%, she appeared to be in a coma. On her last day, we stopped the glucose and I also stopped using the suction machine to clear her throat. One of the most difficult things I ever had to do. It's been 2.5 years since I lost her and sometimes it seems just like yesterday. Would give everything I own to have her back, but wouldn't want her to endure what she was having to live through during those final weeks. So brave. Never complained. An innocent lamb. I miss my Valentine.

Ketchupman

[easterncedar in reply to ketchupman]

HI, Ketchupman. Good to see you. Been a while. How are you?

[ketchupman in reply to easterncedar]

Doing fine. Permanently living on the Panhandle now in Pensacola Florida. Also taking care of my 85 year old father. Hope you’re doing well.

DAN

[easterncedar in reply to ketchupman]

I'm taking care of my 92 year old mother. Glad to, too.

[lindaD_ in reply to ketchupman]

so so wiked isnt it xx

[PSomani]

Agree. Some of the wiser docs clearly say that Neuro linked medication in the end is not of much help. Hence they reduce it.

Basically make the person comfortable as per choice if known.

The last stage is the worst since there is not much that can be done to do anything

Take care

Anshuman

[Katiebow]

My husband had morphine patch and syringe driver fitted the night before he died. Never sure if he needed syringe driver but he had lost all ways of communicating and I was afraid he was in pain and couldn't let me know.

Kate xx

[Ratcliffe]

David had nothing. Absolutely nothing. If I’m honest, he was abandoned by the U.K. system, no one seemed to care, it was like he didn’t exist. With the exception of the local council authority who were Great, I feel he was completely let down by the NHS system. I fought it all the time but couldn’t even get an appointment most of the time.

If I had the energy I would demand enquiries as to what happened, but by the time he died, I had nothing left to fight with.

[Ratcliffe]

Sorry, you touched a sore point, one that I am bitter about.

[raincitygirl in reply to Ratcliffe]

Sounds like you have every right to be, Derek.

💔

Anne G.

[Reidallison]

Hi, my mom, her last 36 hrs was given morphine with a dropper on the inside of her cheek for air hunger!! And oxygen to just make her last breaths comfortable. Best of luck to you during these times!

Hugs,

Alli