memory of jhon: hi every one well tonight i... - PSP Association

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memory of jhon

laila123 profile image
8 Replies

hi every one well tonight i am having a charity bash for awarness of psp my battle for it to be reconised and put into the cralikiam has been hard but succseful i will keep you all infofmed of whats going on i wish you all peace

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laila123 profile image
laila123
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8 Replies
Heady profile image
Heady

Best of luck!

Lots of love

Heady

NannaB profile image
NannaB

Wishing you every success.

X

abirke profile image
abirke

On behalf of my husband and me, thank you that you have thought of and are conducting this PSP awareness bash...Good luck I hope it is successful...What is a cralikiam?

AVB

in reply toabirke

I think she means 'curriculum'. Baffled me, too, at first.

abirke profile image
abirke in reply to

Oh ok Thank you pattz!

Yvonneandgeorge profile image
Yvonneandgeorge

Good luck, hope all goes well xxxxx

laila123 profile image
laila123

yes it was that word bad speller it was a great night total amount up to now is 560 still going thancks to all of you for chating the comfort you have given me

Joandbear profile image
Joandbear

When my husband died (September 30th. 2015) in lieu of flowers we requested donations to Cure PSP/CBD/MSA. Yesterday a got a thank you letter from them with a long list of folks who had followed Bear's wishes. Made me feel good to do that. IT WAS A LONG 3 1/2 year battle, and yet now it seems short when I see some of your posts. God bless us all this disease is horrible. I'm glad Bear's suffering is done, and I miss him with every breath. Thank God for my two pup kids, they give me so much love.

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