To all you newbies joining the site WELCOME!! - PSP Association

PSP Association

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To all you newbies joining the site WELCOME!!

jillannf6 profile image
15 Replies

hi there

i am JILL and was dxd with

PSP NEArly 5 yr s a go now and am still here upright most of the time

falls are few er now as i use a wheelchair inside and outside (12 months) about 10 on a good day

my speech hs got a lot quieter and much more garbled (12 months too)

the local hospice has beenegreat f or day care getting me the CHC on appeal by a different team ad buy making me realise that thee are some great tpeopel out there most of whom are dyi g of cancer but it si a good place to be a(nd i am awaiting my 3rd x 12 week session)

MUY ACARE RHAS JUS T ARRIVED SO I NEED OT GO OT THE TOILET ;/ SHOWER ./THEN DRESSS FOR THE DAY AND THE EVENING (OFF TO A SAINTS MATCH AT THE LOCAL GROUND) RUGNY LEAGUE 4 THEOS EKNO IN TH KNOW

BY WHEELCHAIR OF COURSE

LOL JILL

:-)

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jillannf6 profile image
jillannf6
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15 Replies
Heady profile image
Heady

Hi Jill, lovely to hear from you. You have been quiet recently, I was starting to get worried that the computer had finally given up the ghost!

S is busy watching the Rugby World Cup at the moment! We have tickets for the final, so hoping like mad, that England get through!

Enjoy the match tonight, hope your team wins!!!

Lots of love

Heady

easterncedar profile image
easterncedar

Always good to hear from you, Jill. You are inspirational, you know! Thanks for that.

NannaB profile image
NannaB

Hi Jill. Great to see you back. Enjoy the game tonight. Wrap up warm.

X

Yvonneandgeorge profile image
Yvonneandgeorge

Hi Jill so glad that you are back xxxx

Patriciapmr profile image
Patriciapmr

Hi Jill,

Lovely to have you back, I too was getting a bit worried that you hadn't posted for a while!

Enjoy the match!

Love and hugs....Pat xx

abirke profile image
abirke

Greetings Jill. It's been awhile . Were you on holiday. I am glad you are able to go to a rugby game now and then. The air is getting a little cooler here in the US, and ya'll are a bit North of Arkansas so I'm sure ya'll have much cooler nights.....get ya a sweater1 and have soem fun...Welcome back

AVB

jillannf6 profile image
jillannf6

TA FOR ALL YOR KIND COMMENTS= I DID NOT GO TO THE, MATCH AFTER ALL AS I HAD SO MANY FALLS YESTERDAY THAY I DIDNT WNAT TO FALL OVER A T T HE MATCH;LIKE LAST WEEK ,WHEN I FELL OVER JSUT GETTIGN TO MY SEAT AND BROUGHT MY PARTNER DOWN WITH ME TOO EXCEPT THAT HE FELL ON TO THE SEAT AND HURT HIS RIBS ( A KIND MAN WHO WA S ALREADY

IN HSI SEA T HELPE D ME UP AND GOT ME TO MY SEAT)

THATS ALL FOR NOW FOLKS A SI STILL CANNOT SEE TSSCREEN PROPERLYLOKIK KLOL LOL JILL

:-)

Doglinton profile image
Doglinton

Good to hear from you, Jill. Did you have a good time in Yorkshire ? We had good weather there and felt replenished.

We also are enjoying rugby on T.V.but I wouldn't want to go to a match. C. would though. He'd love to go to the Rugby final, Heady.

Good weather this weekend. Have a good weekend.

love, Jean x

Tz2388 profile image
Tz2388

Thanks for being such a positive person and still getting out and about! It's a kick in the pants for the rest of us! One of the Jills.

Hi Jill,

I have been diagnosed with CBD and just loved reading your post, thanks it is so good to hear from a fellow sufferer. I too have been falling quite a lot recently.....I still plod around on my wobbly pins ....I am a stubborn independent old girl who is fighting hard to keep on top of it all. Thanks for making me smile today.

Love and hugs,

Lyn.

jillannf6 profile image
jillannf6

hi lyn

good 2 hear fm you

lol jill

:--)

jillannf6 profile image
jillannf6

hi lyn. r u in the uk? or usa?or canada?

lol jill

:-)

sammy90210 profile image
sammy90210

Great to hear from you again, Jill

Best wishes for your health and well being! :))

jillannf6 profile image
jillannf6

HI ALL OF U

,MANY THANKS SFOR YORU KIND REPLEIS

I WISH MY PARTNER WOUDL FREAD SOME OF THEM SAYING I AM AN INSPIRATION - I DO NOT FEEL LIEK ONE ATALL BUT AFTER ALL TOMORROW IS ANOHTER DAY OR TDOAY IS !

LOL Jill

:-)

Heady profile image
Heady

Hi Jill, you don't feel as if you are an inspiration, any more than I feel as if I am coping. But, both of us are still here. Your words do help others, you are an inspiration to all of us. We learn a lot from you, as you are still able to join in conversations with us.

Of course, we know you are struggling, but you still make time, to send love and comfort across the ether.

I would like to thank you on behalf of us all and you can tell your partner that!!!!!

Lots of love

Heady

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