PSP NEArly 5 yr s a go now and am still here upright most of the time
falls are few er now as i use a wheelchair inside and outside (12 months) about 10 on a good day
my speech hs got a lot quieter and much more garbled (12 months too)
the local hospice has beenegreat f or day care getting me the CHC on appeal by a different team ad buy making me realise that thee are some great tpeopel out there most of whom are dyi g of cancer but it si a good place to be a(nd i am awaiting my 3rd x 12 week session)
MUY ACARE RHAS JUS T ARRIVED SO I NEED OT GO OT THE TOILET ;/ SHOWER ./THEN DRESSS FOR THE DAY AND THE EVENING (OFF TO A SAINTS MATCH AT THE LOCAL GROUND) RUGNY LEAGUE 4 THEOS EKNO IN TH KNOW
BY WHEELCHAIR OF COURSE
LOL JILL
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jillannf6
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Greetings Jill. It's been awhile . Were you on holiday. I am glad you are able to go to a rugby game now and then. The air is getting a little cooler here in the US, and ya'll are a bit North of Arkansas so I'm sure ya'll have much cooler nights.....get ya a sweater1 and have soem fun...Welcome back
TA FOR ALL YOR KIND COMMENTS= I DID NOT GO TO THE, MATCH AFTER ALL AS I HAD SO MANY FALLS YESTERDAY THAY I DIDNT WNAT TO FALL OVER A T T HE MATCH;LIKE LAST WEEK ,WHEN I FELL OVER JSUT GETTIGN TO MY SEAT AND BROUGHT MY PARTNER DOWN WITH ME TOO EXCEPT THAT HE FELL ON TO THE SEAT AND HURT HIS RIBS ( A KIND MAN WHO WA S ALREADY
IN HSI SEA T HELPE D ME UP AND GOT ME TO MY SEAT)
THATS ALL FOR NOW FOLKS A SI STILL CANNOT SEE TSSCREEN PROPERLYLOKIK KLOL LOL JILL
I have been diagnosed with CBD and just loved reading your post, thanks it is so good to hear from a fellow sufferer. I too have been falling quite a lot recently.....I still plod around on my wobbly pins ....I am a stubborn independent old girl who is fighting hard to keep on top of it all. Thanks for making me smile today.
I WISH MY PARTNER WOUDL FREAD SOME OF THEM SAYING I AM AN INSPIRATION - I DO NOT FEEL LIEK ONE ATALL BUT AFTER ALL TOMORROW IS ANOHTER DAY OR TDOAY IS !
Hi Jill, you don't feel as if you are an inspiration, any more than I feel as if I am coping. But, both of us are still here. Your words do help others, you are an inspiration to all of us. We learn a lot from you, as you are still able to join in conversations with us.
Of course, we know you are struggling, but you still make time, to send love and comfort across the ether.
I would like to thank you on behalf of us all and you can tell your partner that!!!!!
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