NHS funded nursing care - If you can't get CHC you should be offered this.

[Kevin_1]

A request for Continuing Health Care should always be the first route to try. If you fail do consider appealing.

If six months have gone by since the assessment or the condition has worsened do consider requesting a further assessment.

Meanwhile the Clinical Commissioning Group (who manage CHC along a lot else) should have offered NHS-funded nursing care.

It's not worth a huge amount somewhere in the £150 / week area - but its better than nothing.

gov.uk/government/publicati...

You can ask for funded nursing care with out going down the CHC route too.

Just ask for it.

Best

Kevin

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[Spiralsparkle]

How do they determine between the two as such? Need nursing care but not 100%.

I've finally received my paperwork from Assessment in September. The CCG have decided to joint fund 25% so acknowledge there some need I guess. Talking to Beacon next week about if worth appealing or just asking for another assessment.

[Kevin_1 in reply to Spiralsparkle]

Hi SpiralSparkle

They assess what the needs are and work out what they need to put in place to meet them.

I would also talk to Beacon about the legality of an assessment being put back to September. That sounds exceptionally unreasonable. I assume that is the CHC assessment?

Are they proposing to pay more than £158.00 as their 25% contribution - I'm curious. £158.00 is the Funded Nursing Care rate which is usually applied in joint funding. That is the NHS funded Nursing Care in this thread.

Good luck.

[Spiralsparkle in reply to Kevin_1]

They haven't given a monetary value , just 25%. The are blaming the council for why it has taken so long to get back to me. This was after formal complaint why i had not received anything since the MDT assessment. Beacon are ones who told me to do the formal complaint first to get the decision paperwork and then go from there.

The actual DST was done in February last year and didn't get the MDT until September !

I've spoke to various HCP and they are all clueless about CHC and said things like you won't get it until in last 12 weeks of life, you won't get it as she can swallow still. I've got no one who will back me up that she needs it. Neurologist said ask an advocate I can't get involved!

[Kevin_1 in reply to Spiralsparkle]

Hi Spiralsparkle

The way CHC processes are conducted can be totally Kafkeresque, to put it mildly. Yes most HCPs aren't trained in CHC and frankly, they should keep their mouths shut. They do so much harm with their ill informed comments.

The HCP's are obliged to provide evidence and not recommendations. So the fact they won't back you up is of little consequence. You could think of the CHC process as being like a court. They weigh the evidence submitted to them and that which they gather themselves, but no one would advise the judge as to what the outcome should be.

It is unacceptable for the CCG to just blame the Soc. Serv. I would be asking them what they have done to get things moving. That is their duty.

They should backdate to last February.

Whenever you write to the CCG do mention in your letter that you are now actively involving legal support. It tends to have a laxative effect on them.

Any way - please forgive the rant - You've got Beacon involved - great.

Best to you

Kevin

[Spiralsparkle in reply to Kevin_1]

The CCG said in the letter that the complaint had raised the issue of procedure when joint funded decision made and that they had to follow it up and wouldn't happen again. Will see what Beacon say, they don't know the full story yet, I guess that ball starts rolling from the phone call next week.

[Spiralsparkle in reply to Kevin_1]

Forgot to say on 1st assessment we got FNC decision but no CHC. This is second one and 25%, no mention of FNC.

[Kevin_1 in reply to Spiralsparkle]

Hi SpiralSp.

That's why I was asking.

It is legal to give FNC. People call it part funding. Technically it's not. FNC is to pay for the health component and in that scenario the Soc. Serv. pay the social care.

'Part funding' in any other way is unlawful. It is explicitly stated in the Nat. Serv. Framework that it is not allowed.

Anyway you get that ball rolling and hopefully it will be a cannon ball at aimed at their front door!

[Spiralsparkle in reply to Kevin_1]

Ah ok so it shouldn't be joint funded by law?

The FNC in first assessment was if she went into nursing care, didn't happen when still at home.

My brain really does not work anymore. Families really don't need this stress on top of watching the person they love and care for deteriorating. Makes me so mad.

[Kevin_1 in reply to Spiralsparkle]

Hi Sparalsparkle

Don't stress over the joint funding. Just see what happens. Do mention it to Beacon though.

I agree as carers we have enough exhaustion and stress without the CCG shenanigans. That's why I try to do what I can about it here.

Yes, it makes me angry too. Stick to your guns you will most likely win through.

[Spiralsparkle in reply to Kevin_1]

You are a font of knowledge angel to all of us, that is for sure.

Thank you very much.

hugs to you & Liz. Hope she is doing as good as she can be x

[NanBabs]

Kevin,

We were awarded FNC immediately after having CHC withdrawn, I felt it was a `consolation` prize i.e. they were saving money and hoped it would prevent me from pursuing an further appeal.

Keep up the good work.

xx