Looking for someone on this site who is li... - PSP Association

PSP Association

9,266 members β€’ 11,356 posts

Looking for someone on this site who is living is a South Africa

Althea-c profile image
Althea-c
β€’5 Replies

Living in South Africa I would dearly like to meet some one on this site that I could visit

There was a woman named Vissie but she hasn't replied.she lives in Pretoria South Africa.if any of you know her or any South Africans please mention me .

There is no support group here and I can't believe that Barry is the only PSP suffer in this country. Much appreciated in advance.

Althea πŸ’›πŸ™

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Althea-c profile image
Althea-c
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5 Replies
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Heady profile image
Heady

Hi, you are not the only one going through PSP in South Africa. Although I live in the UK, we did spend a lot of time in SA. The first doctor, apart from Steve's consultant, that had ever heard of PSP was our GP in Franshhoek. He made Steve's final years bearable, as we were able to travel to our house, knowing we would have better support than we had at home in England.

I don't know where you are, but I know one of our members here,lives in Jo'burg. Unfortunately her husband has lost his battle, but I know she still reads occassionally. Hopefully she will read your post.

Lots of love

Anne

Althea-c profile image
Althea-c in reply to Heady

Thank you for your help Anne πŸ’›πŸ™

Sawa profile image
Sawa

Hi Althea,

I'm in South Africa, living in Jhb. As Heady mentioned, I lost my hubby almost 6 months ago. Besides me, there is a lady in the Cape, who's husband has PSP, and I am in touch with another 2 people (1 in Pta and 1 in Jhb) who have walked this path too. More than happy to chat or if you need some help? PM your number and let's connect. I only found the other South African PSP'ers after we'd already been dealing with PSP on our own for over 4 years, so I know how it can feel if you think you are the only one. But you definitely are not!

Sawa

Althea-c profile image
Althea-c in reply to Sawa

Dear Sawa, you have made my day. I would love to be in contact and find people in SA πŸ’›πŸ™ my cell no is 082 757 2478

JackieEM profile image
JackieEM

Dear Althea, we live in Johannesburg, and my mom has been diagnosed with CBD. I would very much like to contact you and Sawa . My number is 0832673267

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