hi all today we will have a sp0ecial hug day so if you have just woken up and read this post you might be just in time to give your carer or the patient a special hug because of who they are or what they do for you NOW YOU HAVE 30 MINS LEFT TO DO THIS
I WILL NOT SAY WHEN THE TIME STARTS FROM MATES COME ON YOU PSP BLOKES SHOW THEM THAT WE DO UNDERSTAND NOWS YOUR CHANCE FOR A GO0D SMOOTCH PETER JONES QUEENSLAND AUSTRALIA PSP SUFFERER
Morning Peter, it's only 5.00pm here in England. S is still sound asleep, me? Well, couldn't sleep, so got up for a while. Got nobody to hug at the moment, so I am sending you a big ether hug, for cheering me up and just being there!!!
Lots of love
Heady
heady thanks anyway mate he will wake up soon mate then you can surprise him good luck with that mate see yer peter jones Queensland Australia psp sufferer
Best wishes to both of you from South England. Hoping for a good day. Like you style pete
jmbb
thanks jmbb nice to hear from you see yer mates take care peter jones where are you Brighton Hove or Eastbourne in he south east mate
WE are in longfield, we once went to eastbourne but my wife got a pneumonia on the first night. we dont travel very far at all these days. best wishes jmbb
Hello Peter...I,m like Heady,I,m up at 3.20 am as my legs and back hurt like heck....so another few Tylenols and it should pass,Madeline is having real problems breathing,much like croops that a child often gets but it,s really sticking these past days,so I will send you all a hug and give Madeline hers in the morning...best regards,Rollie
Hi Rollie, this site is a god send for all these lonely nights of not sleeping! Hope we both manage a few more hours tonight. It helps to get through the day. Look after that back of yours, make sure you get some treatment!
Big hug to you and Madeline.
Lots of love
Heady
Hi Heady..I,m sure of one thing 5 years ago I felt like I still was 29,now it,s 92...psp is very progressive,good to hear from you,best to both of you,Rollie
Heady...I must be the only one up...and I thought Australians were on top of everything...!!!regards,Rollie
Hi Peter
Don't often write on here but read most of the postings everyday. Unfortunately my Tony (PSP sufferer for over 5 years) has been in a nursing home now for the past year so I don't have anyone here to hug. Due to my own deteriorating health (I have lung cancer) I am not always well enough to visit Tony every day, but we always, and without exception, have lots of hugs when we are together. Hopefully I shall be up to visiting him later today so I will make sure he has a "special" hug and I will tell him of your idea. The nurses and Carers in the home where he lives are amazing and over the last 12 months we have built up an incredibly close relationship which always involves a hug when we meet. Tactile behaviour is very important I feel, particularly as Tony is not able to do much else and he responds really well when we share our usual hugs. I see your postings on here all the time so I'm sending you a virtual hug to say thanks for taking the time and trouble to put your thoughts down for others to read. It is now 07.55 so I hope I haven't missed the boat with the "hugging"time! Kind regards and take care......SuzueQ x
Hi SuzieQ,
Sending you a huge special hug! Hope you were able to get to see Tony today, to give him yours!
Lots of love
Heady
Hi SusieQ, it's so good to hear from you again. I often think of you and your dear husband. I hope you did get to see him today and give him a big hug. It must be reassuring to know he is being cared for in a loving environment and that you have been able to build a good relationship with the nurses and carers. It is important to have hugs.
Take care SusieQ.
Nanna B xx
susueQ well thanks for your input mate it was good to hear from you \\well mate you have had some rotten luck all round haven't you but stick with it mate I am sending a special peter jones hug for you today matey
they do not go very often so it will stand you in good stead until you see your husband mate kind regards to him and you take care of yourself peter jones queensland Australia psp sufferer
Hi Peter, I'm not much into hugging fella's but for you I could make an exception. It's likely your day has drawn to a close whereas with me it's about to start, I guess I'm still catching up on sleep or have got into the habit of strange hours. Hope you knees have started behaving themselves again, with your spirit I reckon they wouldn't dare give you grief for too long.
My very best wishes, Jerry.
hi jerry thanks for your input my friend yes mate my day is almost over but im not === not yet anyway see yer matey take care peter jones queensland Australia psp sufferer
to u too Peter - is it cold in Qld? OK here marytea
yes marytea it is a bit chilly here tonight and in the mornings its been a bit to \\\\ but I think the weather pattern has changed it will be back to normal soon I hope I hate the cold but the days are really terrific here around about august we get the westerly winds which are not to pleasant but they do not last long matey actually I think we have the best climate in the world but I would do wouldn't I cause I live here and love it =see yer mary tea take care peter jones queensland Australia psp sufferer
Here's a virtual hug from East Yorkshire.The Sun is shining and it's 20 degrees. World war 1 Service this afternoon singing "Pack up your troubles". Peter.
hi Toyota thanks for the virtual hug from east Yorkshire mate I thought that was a good one mate'' pack up your troubles'' I aint got none matey well just a little problem called psp for short but I beleive you have it as well mate
if my memory is not going to much welcome to the club young fellow see yer take care in that 20 degrees I am glad that you have tasted summer at last my friend we were 29 on friday I believe although it did not feel like it
but that is normal for us and there was no humidity thats the bugger here if you get humidity with a reasonably high temp but I had a xmas here and it was 43 degrees now that's getting warm\\ see yer Toyota from east Yorkshire peter jones queensland Australia psp sufferer
hi jill has the online party started yet peterjones queensland australia
Hi Peter. Have taken your advice. Xx
Thanks, mr. Jones! I may be late, but I'll take any excuse for a smooch. My guy is very cuddly always! And how are you this fine day? All the best, Easterncedar
Peter, lots of virtual hugs from me.
Maddy
thanks maddie I feel quite hugged out mate see yer
petrer jones queensland australia
Thanks for the hug, Peter - I needed that!
Bit late, but here's a virtual one back.
Mo
thanks mo you=made my day peter jones queensland
Australia see yer mate take care
Hi Peter Jones, I missed this post earlier but just read it to Colin and he laughed and put his arms out for a hug. I'm sending you a virtual hug to start your morning.
Have a good day and hope the appointments go ok.
Nanna B
hi nanna b wellmy day has just started it was about 345when i woke up but layed in bed until 5-45 then I got up and showered i hope you was ok after your drop of red mate it seems like colin enjoyed himself mate that makes me happy I am glad\\\ so see yer nanna b and colin take care both of you peter jones queensland Australia now must rush
Hi Peter Jones, hope your appointments went well and you had a good fall free day. The Rose did go to my head a bit as we had a late lunch but I thought I'd have a doze in the afternoon. Just sat down and my brother and sister in law turned up and 3 hours later, as they left, a friend arrived. I'd revived by then and do love callers so all in all with party and visitors, it was a good day.
You are probably off to bed again now so night night, sleep tight, don't let the bed bugs bite. If they do, get a shoe and hit them til they're black and blue.
Nanna Bx
My dear Sharyn is in heaven but I'm sending her a spiritual hug!! Jimbo
Hi sweetie,
I've sent one up to my lovely Mum too. Sending you a big sqeezey tight cuddle too my lovely.
JoJo
Thanks Jo-Jo I'm hurting with the loss of my dear wife Sharyn at the moment. It's been three months and things aren't getting better thus far. Jimbo
My heart does hurt for your loss Jim, I still miss my Mum greatly since she passed 10 months ago. I know it's a totally different type of loss with a spouse. Have you thought about grief counselling at all? I know it was a great support to my Mother in Law who lost her husband very suddenly.
Warmest regards my friend
JoJo xxx
Oh Jimbo, get outside and take a walk in the fresh air-she would want you to. I know you are at loss now as to what to do if you are not taking care of her. It does become who we are doesn't it? Write. Put in all down on paper. The good and the bad, even the mundane (if such a thing exists with PSP). I will be extremely cathartic and help you focus on the happy times. All the best.
GC
Hi Gramps
What a wonderful idea. I'm sending special hugs of course to you and Stella along with much love.
Also sending a huge virtual cuddle to all our wonderful PSP community.
JoJo
❤️
my opologies to,everyone I failed to answer to last night im only a one finger typist im afraid so if I missed you out it was purely unintentional I can assure you but keep battling on peter jones queensland Australia psp msufferer
Hey Mr. Jones, I think how you manage with one finger typing is true prestidigitation genius. (Did I spell that correctly?). Pure magic! And good day to you on the other side of this little blue planet! Best, EC
hi eastern cedar and mr cedar well I do not \ know if
\\you spelt it correctly or not because I could not even pronounce the word mate so we are pretty even how is mr going along now withy hes word BIG I have that every week the phsio lady put that in the program especially for me because it gets your voice up another level as well as the exercise you get out of it but I do not think the other members of the group were to impressed
because they had more exercises to do on top of there normal workload because she really puts you through your paces when you gp there every week matey I am the only one with psp the others have stroke and MS and general lasiness I think and me included at times as well to be honest about it you see I still have the good letter still but oi like this old puter mate oh are oh he argh that was my country cousin talking to you wekll my wife goes for an enderscope and colonoscopy on weds that's tomorrow boy where has this week gone to
she had her main artery done last year the on the one that goes to ,the brain is that the carotid or cartoid
she had all the plaque taken out she is much braver than i mate she goes back for the other side to be scanned to see if it is ok i hope so with me as well boy she has had her share well you two cedars standing tall like pines tell mr c if he bends down or does any exercise not to let hes nose go past hes feet if you know what i mean because he will lose balance otherwise well with those words of wisdom I will say see yer take care mr c im counting on you and you mrs c look after that arm \shoulder wont you don't go bashing mr c around will you or shoveling piles of snow although it should have all gone by now see yer take care peter jones queensland Australia psp sufferer
PJ, I wish I could give YOU a big hug! I love your attitude and I must say your Missus is a very lucky lady.
I know you posted this awhile ago but I just gave my guy a good bear hug after a very rough day today and he fell asleep with a smile on his face.
Best to you and yours
JGC
hi gold cap I wonder what mr goldcap was smiling about mate but its a nice way to go off to sleep isn't it mate !!!!!!! take care thanks for your input\\\\\ make everyday count matey best wishes to you and mr g\\\\\\ peter jones queensland Australia psp sufferer\\
all hi everyone I ill officially close a special hug day it went on for 6 more days than I thought so you really made a meal of it didn't you but I forgot to end it sooner otherwise we will have no energy left for other things like washing up and doing the ironing and doing the beds and all those little mundane things getting ready to start a new day all the things that carers like to do themselves but there's plenty left over for them I have only touched the tip of the iceberg as what work is left over for them to do because I am on a minced diet and thickened fluids which gives my wife enough time to sit down and have a sleep which she deserves after peeling the potatoes and doing the mince and vegetables and meat changing the beds taking the rubbish out =which I am supposed to do but because I fall quite a bit she does it for me or else her BP goes up high but I say to her im the one that is hurt im the one that has fallen over I wonder how many of us have said that \\\\ I will let you catch your breath there mates\\\\ thats my first full stop of the night
and only one so you had better make the best of it\\\ sorry 2nd one well everyone who answed my post I thank you for your input each and everyone of you and maybe for those that like a bit of a smootch we will have another special hugs day later on in the year
god willing !!!!! but im sure you will not need my help to get you started on this lark anyway im off to bed have been to the RSL CLUB TONIGHT AND HAVE JUST GOT HOME WITH THE AID OF MY DAUGHTER WHO DROVE US THERE AND BROUGHT US HOME AGAIN AND MY GOOD WIFE WHO KEEPS REMINDING ME NOT TO FALL OVER SO GOODNIGHT EVERYONE TAKE CARE AND YES I HAD A VERY PLEASANT EVENING A GOOD MEAL TO SAVE MY WIFE COOKING AND A GOOD WIN ON THE POKER MACHINES OF WHICH J I GAVE MY WIFE A SHARE AND MY DAUGHTER OF MY WINNINGS BUT YOU DONT GET MUCH CHANGE LEFT OUT OF A DOLLAR DO YOU NO ONLY JOKING IT WAS A VERY SATISFYING WIN\\\NO THATS 3 FULL STOPS \\ NO AGAIN 4 FULL STOPS I MUST BE GETTING OLD OR SHORT OF BREATH MYSELF WELL I WAS SATISFIED WITH IT BEST WISHES PETER JONES QUEENSLAND AUSTRALIA PSP SUFFERER AND TIRED OUT BUT CONTENTED SEE YER ALL \\\
GC
Some days it's too overwhelming 
Let's reclaim Valentine's Day!
I discovered this on my mobile this morning
Difficult Day Tomorrow
