Co emzyme Q10 , Lithium, alpha lipoic acid... - PSP Association

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Co emzyme Q10 , Lithium, alpha lipoic acid, L carnitine

clairev profile image
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anyone has been taking these and noted some improvements?

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clairev
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clairev profile image
clairev

thank you christine47, it is merely helpfull, l will give to my mum the juvenon and hope this will stop progression... lithium sounds more difficult to take because of antagonism with other medicines... finger cross for your husband...

clairev

I am taking Co-enzyme Q10 at 400mg three times a day with Soya Milk. CQ10 is lipid soluble and it is not easily absorbed in the gut. I read that soya oil has a hydrophilic part to its molecule and thus CQ10 can dissolve into the oil anf then can piggy back through the stomach lining. Apparently some 300% absorption gain is achieved.

My speech has improved since starting this 6 month ago. However my balance continues to worsen as does my memory. However the deterioration is markedly slower than it was. I have no way of telling whether this is the diseases course or whether the slowing is from the CQ 10.

I hope this is helpful.

Liz

(Typed with assistance from my partner)

clairev profile image
clairev in reply to

thank you Liz, medicines are different in France and our medicines are very very traditionnal ( they look at supplement like sthg for tourists) but l will buy some Coenzyme Q10 on a french website and will give to my mum. you have all my sympathy... clairev

clairev profile image
clairev

would you mind to confirm the dose of Coenzyme Q10 your husband takes?

clarev

The quality varies a lot so I use the Puritans Pride ( a quality brand) bought on their website. I reckon the price is very competitive. There will be some import duties - but the price is still good.

While you wait for Christine47 to come back on the dose - I have based my dose at the maximum used in the first (small) trial. Also on a specialist who gave a lecture and he said that if he had PSP he would use this at that dose. The big issue is absorbing it. So it must be had with a meal to get some fats to dissolve it. Japanese research showed an increase of 300% absorbed if taken with soya oil. the trouble is so much research seems to be tied to marketing!

Thankyou for your kind wishes and I wish you and yours well.

Liz

Typed with assistance.

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