From tiny acorns...

Welcome to a new, free PSP Association resource delivered through HealthUnlocked.

This new site doesn’t replace their existing services – like their helpline or local support groups – but expands what’s available to you. Simply put, this site is an easy and personal way to gather and share information securely from others living with, working in or affected by PSP and CBD.

To summarise what’s available on the site:

The 'Community Blog' is for people like you to write your own blogs. Be optimistic, be funny, be helpful or just vent but be open and honest about life with the conditions and there’ll probably be a lot of people nodding at their computer in agreement as they read your posts.

And just hit “comment” below a blog entry to add your thoughts on someone else’s blog post. (You can do it to this one as a practice if it’s your first time.)

'Hospitals' shows feedback on hospital facilities from others in your area. It might help give you ideas on who you want to help manage or treat your condition. New reviews will be uploaded all the time so it’s a really useful resource.

'Questions' allows you to call on the collective experience and wisdom of the community - perhaps how others experienced a particular treatment

And you can answer the 'Poll' for a quick way of seeing how others affected by PSP and CBD might feel about a particular topic.

Over time you will see your community grow. Our experience tells us that new members come in fits and bursts and is definitely affected by how much you get involved in the site. The more you add to it, the more you’ll get from it.

We hope that you will find the new site useful, interesting and rewarding. We’ll be following its development with you and we’re always happy to get feedback so that we can improve what we offer you.

Enjoy it.