It is about a year ago my husband came home on leave from the USA. He was already receiving treatment for depression and had had some neurological investigations which had been inconclusive at this stage.
When I picked him up at the airport, just one look told me he was not going back to work. He had lost weight, was very disheveled and totally disinterested in anything. Four months later we received the diagnosis of psp.
A year on there has been a continual decline, which sadly recently has speeded up. Over the last month he has gone from being relatively able to feed, wash and dress himself to requiring help with all of these activities although his abilities vary from day to day.
He has also become far more irascible than previously and this makes life at home quite difficult for everyone. He can be very rude at times to people, but I know this is not my real husband, it is the psp talking.
We have been fortunate in that we do have a supportive continuing care team and we have what is required to meet my husband's needs at the moment. However, the future fills me with dread both for my husband and my family. Celebrating the New Year for us was good, but it also marked the end of his first year of being home with psp, albeit we think he has had psp at least 3-4 years. Psp really does take over doesn't it?
Best wishes to you all for 2012 and may we all find respite at times.