What next?

[MotoGuzziFan]

After having RP and salvage radio therapy I was given the all clear last year. Since then my PSA started to increase, doubling every six months, it is now 0.5 and have had a PET scan which showed something on my left rib and smaller areas of concern on shoulder blade and lung. My oncologist has advised waiting till my PSA gets higher, I think he mentioned 10. before any treatment, which he said would be hormone treatment. I only picked up by chance that my PSA had increased, my GP who checked the results never mentioned anything. I am having three monthly blood tests and due to see my oncologist again in April. Does anybody have any advice as to whether this is the right course to take?

[Murk]

Surprised that your Radiation Oncologist was not giving and monitoring with PSA tests every 90 days.

My advice it's time to get another opinion from a Medical Oncologist as well as a different Radiation Oncologist.

[MotoGuzziFan in reply to Murk]

Thank you Murk, I will ask for a second opinion. I was a little concerned by my oncologists lack of any intervention. He did say that I should wait till my PSA gets to 10. But to me that is only going to make things worse?

[Murk in reply to MotoGuzziFan]

I agree and my motto is... When in doubt, move out!

[Tall_Allen]

Discuss these trials with your oncologist now:

prostatecancer.news/2023/05...

prostatecancer.news/2022/09...

[MotoGuzziFan in reply to Tall_Allen]

Thanks Tall Allen, I will send these on and see what happens.

[MotoGuzziFan in reply to MotoGuzziFan]

Hi Tall Allen, I am trying to organise an appointment with my oncologist, the earliest will be next year. He has expressed via email that my current course of treatment is correct in his opinion. Any additional help or advice would be much appreciated as I find dealing with medical professionals a little intimidating and I find it hard to challenge their decisions. Many thanks!

[bagogeo]

def get an opinion on another rad/oncologist.you should of been on meds by now

[MotoGuzziFan in reply to bagogeo]

Thank you for your advice

[Gtine]

Just want to confirm that the current number is .5 and not .05. If it truly is .5 I agree with the other posters - you need another opinion.

[MotoGuzziFan in reply to Gtine]

Hi Gtine, yes it’s .5 and given everyone’s helpful responses I will ask for another opinion. Not always easy in the UK!