I have been observing this site and all the great people and advice (stats in bio) that is here for quite some time, but finally decided to ask for some support and advice as to dealing with this terrible diagnosis that we all share. I am about to receive my first 1 month shot of Eligard this afternoon, with Feb. 23 the day when I will receive HDR BBT in a nearby center. This will be followed by 15 sessions of EBRT locally, starting on March 15. This has been such an emotional rollercoaster to get to this stage, and I am so tired - it seems as though depression has been a frequent companion for a long time. I am getting cold feet now and am wondering if I have made the right choice (after a long time researching and soul searching), or if I should abandon ship and ask for surgery. Anyone else out there go through this thought process? Just hoping to get some perspective from some of my comrades and maybe some tips as to how to manage this next part of the road, and how I can become more positive in my attitude - I know I must be proactive and try to see the outcome as being successful and not just feel sorry for myself. Thanks again to everyone out there for providing all the information that the medical community seems to think not important. God bless you all...
You probably don't want advice from a chick but here I am. What you are feeling is normal. This is a horrible disease. My husband jumped immediately into wanting surgery, opposite of you, and sometimes I wish he didn't do that. It's SO easy to second guess yourself and worry about outcomes and obsess over your choice. What I have found is that people on the internet tend to push and favor their treatment. Just because it worked for them doesn't mean it's right for you. We all have different needs and different genetic compositions. You need to choose what seems right and then just move forward. Each treatment has positives and negatives and at this point I don't think any of them are foolproof! I repeat none are foolproof. Otherwise this forum would not exist. If it would help you though, to seek a second opinion, do so for your own peace of mind, but once you decide, just move forward.
Also, the hormones are going to make you depressed. Ask for an antidepressant if you need it and don't be ashamed about it.
This is a scary diagnosis, but there are people on this board living for a long time with PCa. You can do this. We are behind you.
Well said. People like confirmation they made the right choice and will tend to defend their position. What’s more, most on here are not professionals. Learned patients to be sure but not doctors.
But bottom line is you have a scary but survivable decease and it is okay to be worried and even depressed. I hate making choices on a topic for which I’m not an expert. Yet here you are. You will make it through which is the good news. There will be some changes and you just love with that. My numbers were worse than yours. I chose surgery. No regrets at all.
Welcome (?) and thanks for sharing your journey, Soab! Do not listen to Fluffy's self-deprecation - my wife actively helps me navigate this unwelcome voyage and this is GREAT advice and observations from beginning to end. The choices I faced - heck, face - felt unfair to me even as my innate, hormonally-driven confidence I'd been (apparently) depending on as a male my whole life was drained by ADT.
You face big decisions, but you have hope, too: "CT whole body scan and Bone scan completed Dec./2020, no evidence of spread outside the prostate." Once you come to a treatment decision, my best advice is not to focus on the treatment, oddly enough....I've strongly felt that I just showed up for most of this... Focus on all of the potential recovery paths from the treatment that truly empower - nutrition, physical-mental exercise, therapy groups, etc.
Remember that you are still you, brother...and, to echo Fluffy...we are behind you.
SeosamhM, I appreciate the encouragement. Not looking forward to the Eligard kicking in but I guess that is part of the whole journey. Best to you, and will be dropping in from time to time...
Thank You for the kind words and helpful thoughts. It took a long time to get to this point, but I do feel positive about the treatment I have chosen and believe that I do have a great chance at many more years to enjoy my family, friends, and the things I enjoy doing. Life will probably never be the same, but have actually learned through this experience to appreciate the things I always took for granted. I do wish you and your husband well, and btw - you sound like a pretty smart chick!