Updated office visit

[Pherndz]

Finally back on track. I met with a Urologist at the Washington DC VA Clinic, and share my story about RP and climbing PSA to .55 post surgery six months. As with my last urologist he suggested radiation of the pelvis area and to set up an appointment with a Radiation oncologist. The latter should happen next week. I have done a little research of my own, and at the rate my PSA is climbing I should hit 4.0 in three years. I don’t believe this matters anymore at this stage of the game. Nor does my Gleason of 3+4=7, but what matters is the pain in my right hip, and frequent urination at night. Tall Man said, I should see a radiation oncologist. He was right. Now I just need someone to start radiation before it gets worse. Nine months after RP next week.

[MichaelDD]

Good call . I too was persistent PSA. Post DaVinci (June 2016) had .024. 3 months after RP done PRE-radiation (38 sessions ) .042 . Doubling during radiation post to .080 . Now Nov 2018 it's 1.99 . Something to watch and question . I remember something TA said to me "it's out there (the cancer) it's just hiding". This past October (2018) I was diagnosed with multiple metastasis to both lungs. Only my lungs. Finding out from my own oncologist and my other now at UCSF pretty rare and unique. Your doubling time is aggressive find that PSA. Even if it stays low. I did out of pocket pay for a GA68-PSMA and "found" mine. Best to you.

[tucker_man in reply to MichaelDD]

Michael, I hope the treatment for your lungs is going well. What area of your body was radiated when your docs suspected metastasis and how did they determine was the right area to radiate? I assume you didn't do the PET scan until after RT? If not, why didn't they do it before RT so they knew where to target? Why did you have to pay for the GA68-PSMA, does insurance not pay for PET scans?