New to the group and new diagnosis

Just curious if it is just me or if others have felt this. I had biopsy 5/23 that was confirmed positive, have CT nd Bone scan tomorrow. But, question is, every since I had the biopsy I have been very fatigued, just not usual amount of energy, not even close. No bleeding, chills, etc, just tired. Could just be me dealing with the news, just seemed to be more than that though.

Looking forward to reading about experiences with this and many ongoing questions I am sure to have

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  • I have had 2 biopsies, TRUS, and MRI Guided. neither one made me tired. If you are stressing over the PCa, that might contribute to your tiredness.

  • Same for me, no fatigue after the biopsy. In theory, unless the biopsy introduced an infection, I don't know how it could cause fatigue, and even an infection wouldn't do it right away. I agree with Roger that stress could be involved.

    I can tell you that after I was diagnosed with prostate cancer I had a lot of stress and slept very poorly - which is enough to make anyone tired. The good news is that I was diagnosed in 2003 and now, 14 years later, I'm still alive and okay.

    Can you tell us your age and PSA and whether the doc gave you information about your Gleason score and stage?

    Best of luck with your treatment, whatever it is.

    Alan

  • sure, should have included that, age 52 gleason score was 4+3, psa never went to high 5.65 was the highest. I think you are both correct, probably just stress, I have some things I can do to help get that under control, time to play with my model trains again :)

  • I'm glad the PSA is low. Given that, I'm very curious as to why they're giving you a CT scan and a bone scan. According to one study I read, a bone scan has a near zero chance of detecting metastases in untreated men with PSA below 20, but it has a 13% chance of producing a false positive. If it comes up positive, which is unlikely, the doctor is almost forced to do more testing, perhaps a bone biopsy to find out why the scan showed an abnormality (which is rarely cancer). Having talked you into the bone scan he now has to justify it by further testing for any positive result.

    I also don't know what they hope to find on a CT scan - which will give you a not so nice dose of radiation and is unlikely to reveal anything.

    I am concerned that you may be in the hands of a urologist who is more interested in income than health. I don't want to be unfair to the guy. He may be very conscientious. I'm not a doctor and I know that your urologist knows a lot more than I do. However, unless he has some special information about your situation beyond the PSA and Gleason score, it seems to me that he's doing a lot of expensive (and somewhat invasive) testing that I thought was pretty well known to be of very low value in your situation.

    I suggest getting a copy of your complete biopsy report - the whole thing, i.e., the papers sent by the pathology lab to your urologist. Then I suggest looking for a second opinion.

    If you live near one of the NCI Designated Cancer Centers, they are good places to go. See: cancer.gov/research/nci-rol...

    If you tell us where you live, someone in the group may have a recommendation too, or someone else you know. The best chance to cure prostate cancer is the first treatment. If it's done badly, you often don't find out until later, after it has spread. So it's important to get the very best doctor you can find to do the treatment, where best means smart, capable, honest, and committed to his patients.

    One last thing I want to mention is that I too had a Gleason 4+3 and a PSA that went up over 10 and, as far as anyone can tell so far, I was cured by my treatment. So keep your spirits up.

    Best of luck.

    Alan

  • Allen, My initial PSA never went above 17.8. My Gleason was 9 (5+4). My initial bone scan & CT scans showed extensive bone Mets in my iliac and L1 thru L4. I never had a bone biopsy until I started a Clinical trial 16 months later. My PSA has always been an excellent indicator of my PCa ups and downs. 5 years with advanced PCA.

  • That's interesting and argues against what I said about bone scans. My ideas on that were formed by this video made by Dr. Gerald Chodak:

    He said that for men with PSA < 20 who have never been treated, .3% (3 out of 1,000) will show cancer on the scans. However 13% (130 out of 1,000) will show some non-cancerous abnormality that may be hard to distinguish from cancer.

    If Chodak's numbers are right, you were in the .3%..

    Alan

  • No fatigue for me either after biopsy. At 52 with a Gleason score of 7 (4+3) I would be highly interested in treatment options and get that going as soon as possible. I was 52 when diagnosed with a Gleason score of 7 (3+4). My staging was T2c. When I heard I had PC, I wanted it out yesterday. I had it out a month later. Once the prostate was out, the staging jumped to T3. All of us here would be interested in your choice of treatment and how that treatment progresses.

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