My brain is screwed up!: My husband... - Prostate Cancer C...

Prostate Cancer Caregivers

868 members205 posts

My brain is screwed up!

Kobina profile image
9 Replies

My husband went on hospice1 month ago they had him on oxycodone, morphine, and Fentenyl trying to get his pain under control he quit eating May 16 till june 10 NOTHING but WATER he is now off of the morphine and oxycodone and on 300 mc of Fentenyl I thought he was dieing and I was trying to prepare myself now since off the oxy and morphine he is wanting to eat and stuff to drink he seems to be doing good but his legs quit working about the same time he quit eating. Now if his legs would work he would seem to be ok??? I thought it was what they call the death rally but now I don’t think so. Now do you see why my brain is screwed up? His mind is still messed up doesn’t think and talk about things that are normal that me or the kids understand. I am sure it is all the opiates! Now I am beginning to wonder if he really needs Hospice or not? Has anyone else experienced this? I have cried rivers.😭 I am not really one to talk to other people about my problems so here I am

Written by
Kobina profile image
Kobina
To view profiles and participate in discussions please or .
Read more about...
9 Replies
Wassersug profile image
Wassersug

Kobina,

I am so sorry that you family has to go through this. I have no expertise, but it certainly sounds like it to me that hospice is the best option for your husband at this time.

Richard W.

teamkv profile image
teamkv

Yes I wouldn't stop hospice. However the body does amazing things while fasting. There are a couple of new documentaries out on fasting and how normal cells have a built in mechanism that goes into protection mode while the bad cells loose their protection and are destroyed. My husband and I watched it last week. Amazing. We are doing intermittent fasting and a ketogenic diet to help heal his body along with standard treatments.

ChuckBandChar profile image
ChuckBandChar

I’m so sorry. So much stress! I agree with the others to retain hospice. They can help control his pain and address any other issues. What does hospice say about those developments?

Kobina profile image
Kobina

his nurse just takes a wait and see approach really doesn’t say much all he really tells us is my husband is driving this boat and what he does is up to him.That they are here to not prolong or shorten his life just to make him comfortable.

NWLiving profile image
NWLiving

How’s your husband now?

Tub111 profile image
Tub111 in reply to NWLiving

I am wondering the same...

Kobina profile image
Kobina

My husband passed away yesterday what a hell of diease for anyone to have to endure! It was the worst hell I have seen anyone have to go through!!! He did have a 4 day rally then stopped drinking an it took him 6 day to pass away. Pray none of you have to endure what he did.

strummer profile image
strummer in reply to Kobina

So sorry for your loss. My sympathy.

Kobina profile image
Kobina in reply to strummer

Thank you

You may also like...

My story with my best buddy

week to find out where we stand. His psa is creeping back up. I think about him every day....

How much to interact with care?

Xtandi but PSA is rising about 2pts a month and is now 20. I always go to his appts with him. I...

How are you managing your emotional rollercoaster?

month three of his passing, has been more difficult than the others. Right when I thought I...

Care to care for a caregiver?

(mostly ankles and legs), shortness of breath, and real fatigue. He doesn't seem to be able to stay...

Two months on Hospice

been on Hospice since the end of August 2019 for Stage 4 Prostate Cancer that has spread to his...