This is all new to me, had been unwell for about a month, awful aches, pains funny headaches, looking the colour of putty,flitting pains, night sweats, you will all know the picture I am painting. On my first visit to my GP she ordered chest xRay and did a lot of bloods and put me on Omeprazole for a gastritis as I had taken too many Brufen and it had irritated my gut big time,
On my return after a week, symptoms had got a lot worse , by now my left leg was weak and really sore, I had to lift it into the car! and when I walked in she said I think I know what's wrong, you have PMR. I had never heard if it and looked blank. She said my blood tests and history were all indicators and she started me on Prednisone 40 mg a day with a warning if things got worse then to get back in touch or if at the weekend then to get onto NHS 24.
2 days later no improvement and by now my headache was dire, right sided headache over my eye with another area at the back and my scalp scarily tender to the touch, unable to brush my hair or even touch it. I was seen at the local hospital and was told I now also had Temporal Arteritis and the Prednisone was upped by 20 mg right away and to continue at 60 mg a day until seeing me GP for a review this Friday.
Last night a 10 pm I suddenly began to feel like me again. I could not believe the difference, today I ache quite a bit, sitting too long watching Baroness Thatchers departure I am afraid.
I am extremely tired, doing not very much makes my ams ache and too much typing on my iPad makes my neck and shoulders sore.
I guess this is just the start. I would really like to know what might be to come in the next few weeks and months. I am off work at present as I don't think I could get from the bus stop to my work anyway let alone do anything useful when I get there. Any ideas how long I might have to be off work, I know it's not a one size fits all but anything would be brilliant.
I apologise for the length of this first blog post, I did read the guidelines but got carried away. This time last week I had never heard of PMR and GCA but I have a horrible feeling I am about to become an expert.