It’s certainly not something to celebrate, but I just wanted to mark the fact that it’s two years since I was diagnosed with PMR. Without wishing to sound like a contestant on a reality show, I have to say that those 2 years have seen me make quite a journey. From being so stiff I could barely move, yet not wishing to begin taking the steroids for fear of the side effects, to jumping around like a linty a few hours after taking the first dose and being released from the pain. I have reduced the dosage from 30mg to 4mg daily, but not without setbacks and flare-ups along the way. I have had to learn that being bloody-minded and refusing to give in to the pain is not always the best way to go, but to capitulate and rest now and then is sensible and not a sign of weakness. I can still go to the gym but now I go to keep myself moving with gentle exercise only. No more “feeling the burn” for me these days! I check in to this website quite often and have been helped and reassured by some of the advice and shared experiences of this dratted condition on offer. I feel lucky that I am not as badly affected as some, and also that I seem to have a good GP who works with me to manage this thing as best we can. Two years ago I thought my life was totally blighted by the effects of PMR. Today I realise that I can still do most things, I just have to spread them out a little more, do them more slowly or be willing to stop and take a break more often. I have my fingers crossed that there won’t be a 3rd anniversary, but only time will tell. Thanks to everyone who shares on this site. It really does help.
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