hi everyone i have just gone down to 5mlg of presl 2wks a go my headache has started on and of now for a few days is this normal. i have had pmr and gca now for 2years have come down of presl slowly over the 2years this is the lowest i have been down to. i have had so much wrong with me when i was on the 60mlg and 40mlg i went from a size 14,16 to a size 22,24. with all the fluid, i have started losing some weight now but i never want to be that size again.i hope i can stay on 5mlg my doctor in the hospital has put me on azathioprine 50mg so i can stay of the high doses of presl. is any one else on this tablet. grace1
has anyone gone on to azathioprine.so they can co... - PMRGCAuk
has anyone gone on to azathioprine.so they can come down of hige dose of presl.
Hi Grace1,
I have been on both methotrexate and azathioprine and both worked in terms of treatment but they affected my liver to such an extent that I had to stop and carry on with the steroids, which I have now been on for nearly 5years.
I am now on a maintenance dose of 5mg, having recently come down after having a flare.
Make sure you have repeated blood tests, I was every two weeks, so that they can monitor your liver function.
All the best Deb
thanks debs, just got a blood test done today will know tomorrow if it,s up or down will let you know tomrrow.
Hi Grace1, good news so far with the bloods, but it will take a while in the system for it to register in the live. I was about 6 weeks before they stopped me as they monitored the levels every other week as there is a clinic especially for this in my doctors.
Im so sorry but I cannot remember the dosage as it was 18months ago, not much help and all the medication does wonders for my memory..Lol.
Make sure you have repeated bloods, I know its a pain, but it really does need monitoring.
Take care and I hope your headache improves soon.
Debs