I am 59 and first got pmr when I was 52. Was on steroids for 7 years (6 mthly injections for the last 2 years).
I remain very stiff and intermittently get those characteristic deepest gnawing aching pains in my legs and neck and get very tempted at times to have another injection. My inflammatory markers used to be sky high and have never gone back to normal but are just up somewhat.
My mother got pmr 20 years ago when she was 70 and remains on 5mg per day. My Dad got it 2 years ago.
I had flu injections and had the most terrible flu which went to pneumonia in the 3 years before I got pmr and suspect that as a cause but won't know until there is good research.
It has been utterly exhausting being in full time work (even an easy office job) and difficult to cope when you know that , tho' only in your 50s, you look like an ancient old person shuffling around and getting up and down from chairs and into cars like you are an old fashioned 90.
Swimming is the best thing for me as well as yoga (which I have kept doing once a week- - I grovel and crawl around to get up and down, but do my best, with the idea of use it or lose it and always fell better.
That's it, I know things could be worse with other illnesses.
Can anyone say for themselves or know anyone where it has completely gone? Best wishes Jane