has anyone gone on to azathioprine.so they can co... - PMRGCAuk

PMRGCAuk

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has anyone gone on to azathioprine.so they can come down of hige dose of presl.

grace1 profile image
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hi everyone i have just gone down to 5mlg of presl 2wks a go my headache has started on and of now for a few days is this normal. i have had pmr and gca now for 2years have come down of presl slowly over the 2years this is the lowest i have been down to. i have had so much wrong with me when i was on the 60mlg and 40mlg i went from a size 14,16 to a size 22,24. with all the fluid, i have started losing some weight now but i never want to be that size again.i hope i can stay on 5mlg my doctor in the hospital has put me on azathioprine 50mg so i can stay of the high doses of presl. is any one else on this tablet. grace1

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Dibs profile image
Dibs

Hi Grace1,

I have been on both methotrexate and azathioprine and both worked in terms of treatment but they affected my liver to such an extent that I had to stop and carry on with the steroids, which I have now been on for nearly 5years.

I am now on a maintenance dose of 5mg, having recently come down after having a flare.

Make sure you have repeated blood tests, I was every two weeks, so that they can monitor your liver function.

All the best Deb

grace1 profile image
grace1 in reply to Dibs

thanks debs, just got a blood test done today will know tomorrow if it,s up or down will let you know tomrrow.

grace1 profile image
grace1 in reply to grace1

hi debs, got blood test back liver fine, but my headaches have come back had to go up to 10mlg yesterday for 1week, my doctor said he was going to put my azathioprine up to 100mlg have you been on this hige dose before. grace1.

Dibs profile image
Dibs

Hi Grace1, good news so far with the bloods, but it will take a while in the system for it to register in the live. I was about 6 weeks before they stopped me as they monitored the levels every other week as there is a clinic especially for this in my doctors.

Im so sorry but I cannot remember the dosage as it was 18months ago, not much help and all the medication does wonders for my memory..Lol.

Make sure you have repeated bloods, I know its a pain, but it really does need monitoring.

Take care and I hope your headache improves soon.

Debs

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