Moonface

[DBE46]

A positive post. I am down to 2mg a day now and just wanted to share. My face looked like it had been painted onto a balloon. Almost back to normal now although my turkey neck under my chin is quite noticeable it’s a small price to pay. Onwards and upwards I feel so much more positive x

[DorsetLady PMRGCAuk volunteer]

Good news… and long may it continue..

[piglette]

Fantastic news.

[PMRpro Ambassador]

Well done - but you're wrong on one thing: it is Onwards and DOWNWARDS here!!!

[DBE46 in reply to PMRpro]

Sorry to hear that. You have been such a part of my journey xx

[HeronNS in reply to DBE46]

Ummm, downwards in the dosage.

[PMRpro Ambassador in reply to DBE46]

Yes - Heron has it, downwards in dose of pred!!!

[DBE46 in reply to PMRpro]

Of course 🙈🙈

[Louisa1840]

It is good to get rid of "Moonface" anyone remember The Faraway Tree by Enid Blyton, I loved it as a child......

[HeronNS in reply to Louisa1840]

I didn't read it as a child but it's funny you should mention it as I discovered it when looking for titles for my daughter to borrow from the library for her little girl. I ended up reading a trilogy!

[Gauralind]

Yippee - sounds great!

[calibriel]

That’s good news. Even though our moonfaces may not be ugly in themselves, people often underestimate how depressing it is not to look like yourself

[Janet57]

well done - that’s such positive news and encouraging for others who get very frustrated by their moon faces (mine was particularly so but back to normal now I’m on 3mg). 😊

[Caloo650]

Having once been on 4mg, a recent GCA flare has me back up at 30mg and so pred belly and moon face have returned. However the good news is from comments on how healthy I look and it's all because the facial wrinkles have been plumped out. I don't tell them about moon face!

[potterylady in reply to Caloo650]

Oh I'm so sorry you're back up to 30mg. It can happen to any of us. xx

[Caloo650 in reply to potterylady]

I don't see how I can ever really be free of this PMR/GCA journey as I'm into my 5th year sadly!

[PMRpro Ambassador in reply to Caloo650]

Around 5 years is a common duration and people have finally got off pred even after as much as 10 years - don't give up yet!!!

[Caloo650 in reply to PMRpro]

Trying to stay positive thanks PMRpro. It helps reading about you and others that have been there for years longer.

[potterylady in reply to Caloo650]

It is so good that we have each other. I would have been SO confused without this platform. I'm almost at the end of 3 years and PMR & GCA are going strong. But thankfully I am reducing the Pred. Finally almost to 6mg.

[Caloo650 in reply to potterylady]

that's good news

[Gauralind in reply to PMRpro]

Thanks for flagging up some perspective and encouragement!