I was diagnosed with PMR beg Dec 2024. Started on 20 mg Pred. Now down to 15mg & reducing 2.5 mg per mth until 10mg then going to reduce by 1mg per mth if all goes well. Generally well, swimming, in the gym, walking etc & getting on with life. My question is, every so often, perhaps every few weeks, I have a day or two when I feel very shaky, wired & out of sorts. It doesn’t seem to be related to a reduction in Pred dose or how much I’ve been doing. Am I right to assume it’s an effect of the steroids? Your thoughts appreciated. Many thanks.
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Dumdeedum
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Hello and welcome. I am not qualified to answer your questions but I can say that you have come to a very good place to get some of the best advice. Browse round, join in, you will be made welcome
May well be the side effects of Pred.. some people are more susceptible than others, but are you really sure it isn’t related to something you’ve done? If might be something you think is insignificant -so maybe keep a diary for a few weeks including food & drink.
It may not been that you desperately overdid it on one day and it may not be the next days when it is, but several days of slightly more than was maybe good for you can build up and then hits. Or you were all wound up to do something and when it is done and dusted - it hits you that now you can relax.
My question is, every so often, perhaps every few weeks, I have a day or two when I feel very shaky, wired & out of sorts. It doesn’t seem to be related to a reduction in Pred dose or how much I’ve been doing.
I was diagnosed last summer and have exactly the same condition. It just hits me for no apparent reason and goes as quickly as it comes. The 'downs' don't seem to be as bad now as they were last year.
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Worst flu ever! 
Palpitations 
Turns out no PMR or GCA
Feeling sick 
