Hope you are all having a good Christmas wherever you are!
Just wanted to say thankyou for all the kind comments - I haven't replied individually as I took an afternoon off so this will have to be my thankyou to you.
Now to recover from eating far too much yesterday and a late night!!!!!
Agree in the ‘too much to eat and late night’ … still eating today as we were invited out to lunch- but more sensible time to bed. Farming SIL back to work tomorrow…
Groan….a bad night here, ha ha! We ate late…but I managed to cook the whole meal myself (David did the veg prep to save my hands, though). I couldn’t have done that 2 weeks ago, so, although, like most, I ‘hate’ steroids, they are a true wonder drug! Today will be one of peace in our house, & happiness that we had such a lovely Christmas Day, & I even managed our short walk in the forest with the ponies! Hope you enjoyed your afternoon! S x
Serves yer right!!😂😂😂😜xxxxxxxxx
Walk in the forest with ponies ……. Sounds magical, I hope you were dressed as a fairy elf 😉 My hubby also helps to save my hands and watching him cut the mince pie lids was very amusing bless him.
Hubby has been Santa for years (had up to 15 requests for appearances until he retired)…so I’ve been Mrs Claus for years now! We live in the forest, & all the animals wander across the roads, it’s their huge home & they roam freely. You have to watch out all the time in the roads! Glad to hear your hubby helps out…I like that, cutting out the m8nce pie lids…we buy ours from the supermarket!! S x
Can’t believe you would have eaten too much!
As long as you and Dorset Lady know just how much we appreciate you. Two of life’s true angels. 💛
Two of life’s true angels.
Not always that angelic (me that is!) -but thank you ☺️
Dear me - just as well they don't know us!!!! Me neither ...
Was discussing some interesting bits of life yesterday with daughter and her neighbours… maybe not so angelic!
Nobody can keep this up for the nine years I have known you. 👼🏻🪽. You have taught so many of us, so much. So thank you 👏👏👏👏
It’s the Viking genes -indestructible (well nearly😳)… 😆
Yes I have sat through what will be 10 years!!!! ( can’t believe it) of reading your replies and Dorset Lady’s replies to a myriad of questions and often the same problems repackaged . Thank you both for your commitment, dedication, patience understanding and compassion. It has been a full time job that you have embarked on which has helped and supported so many you know probably many that you will never know. Knowledge is power and you have supplied that in bucket loads. So helpful when you are worried and confused. Also helpful in making a stand with GPs and Consultants and taking the fear out of these illnesses. So in conclusion thank you both very much, “ angels” as Sheffield Jane concludes and I would agree with that . 💐
Will contain what could be a long post to "thank you"
YOUare worth the praise as are DL,Snazzy and Rugger.As for eating too much,join the club,tummy not used to eating the rich pud,cream and chocs.!Back to normal today ,thank god!xx😳😜
You and Dorset Lady are such exceptional people to give your time and expertise in the way that you do. Thank you so much - it is really much appreciated. 💐
I'll echo everyone else, somewhat belatedly, as I've been online very little since the 22nd since my son and his family arrived on the 22nd from Spain. Since PMR and my lung op they no longer stay at my house, but a local Airbnb but we spend all day and evening together. Today is a day off (apart from shopping!) before the next batch arrive from France. I've managed reasonably well, despite rich food (one morning where I couldn't leave home) and odd hours, and looking forward to the second Xmas!
So thank you to PMRpro and DorsetLady for all their helpful advice over the past two years and wishing them and everyone on site a happy and healthy new year.
I am truly grateful for all the advice from Dorset lady and PMR pro and posts that are helpful a year in now with PMR.
Such support means a great deal as it can feel a battle with GP deciding I need half my steroid dose (in a month!). 6 monthly consultant appointments are not enough as we all know so having access to this website has been invaluable. Please keep up the good work and Happy New Year.
Thank you - to you, DL and all the advice available here. There is a Facebook page called Polymyalgia Group Australia but with nothing like the help here. I have taken the liberty of telling them about PMRGCAuk and this forum. Have had some appreciative replies from some of their top contributors. Happy NY.
The more the merrier…
You have been a tower of strength to me over the last 8 years. Hope you had a good Christmas and wishing you a happy new year xxx
Thank you so much from me too x
Happy New Year and a big, big thank-you to a brilliantly knowledgeable and supportive team.
I haven’t posted on here for a long time but still read! Ive had a rough couple of years , diagnosed with RA in October and now on a biologic. But I wanted to wish you , DL and everyone a Merry Xmas and a happy healthier new year. I won’t forget the support I had from you when I had PMR, so thankyou 👍👍
Thank you!
PMR that was probably a polymyalgic presentation of the RA. But at least you qualify for a range of drugs!!! What are you on? Has it started to help yet?
I’m on adilamumab , an epi pen I use once a fortnight . Started it in February , it was a game changer, worked within days . I went from not being able to use my hands , dress myself or get in and out of bed ( a pain in the night when I needed a wee! lol 😂) to almost back to normal. I’m back seeing the respiratory specialist again as it has affected my lungs , so back on pred for a while too. I tested positive for anti CCP , it probably makes sense to you, I had never come across it before. Apparently that can involve the lungs . I think I was in pain for a few months before I had the biologic , maybe that was when the damage was done . I had my 70 th this year , and I finally feel I have quality of life again . Continuing to ride this roller coaster and grab the good times when I can ! I was diagnosed in October 23 .
ACCP is the more reliable indicator of potential RA - RF is old hat but GPs still look at it on its own. Great you are doing so well.
Fortunately, I was still under rheumatology from PMR but was off pred and just had hydroxychloriquine. So I was in the system and didn’t have to wait for a referral of over a year , apparently. The funding for the biologic has to be applied for apparently, so I consider myself lucky as I have no damage to my joints . I was shocked when I was told how costly each shot is. My respiratory consultant is now putting me to the panel for another drug which has to be funded . This would slow the fibrosis .
What made them look for something else?
Breathlessness and a hacking cough for weeks that no antibiotic would shift. I have interstitial lung disease from years ago thought to have been from a previous drug for my UColitis. I saw this consultant for many years until he signed me off before the pandemic. The GP referred me back but heard nothing so I emailed him myself , he got back to me and arranged lung function tests . He still had access to all my previous CT svcans etc. how’s looking after me again , I think I have learned you have to be proactive now or you fall through the net .
It’s nice to hear you had a good time! Thanks for your very helpful comments, much appreciated. HAPPY NEW YEAR 🍾best regards Shirley
Thank you for all you do!
Hope you enjoyed your Christmas, Health and happiness for a good New year .
From an old timer who is not on here too often--YES--thank you! and thank you to DorsetLady as well. I am so much better and so much more knowledgeable on account of you two!!!!!!!! You have saved my sanity. Merry Christmas.
Glad we’ve saved your sanity -not sure about mine at times 🙈
Never was sane in the first place!
Best not to be … out again for daughter’s birthday -mit lunch 😊
Mine has hers the week before Christmas - even worse because everyone is thinking Christmas ...
I wish everyone happy holidays. We are celebrating Chanukah with all of my 17 grandchildren who are here. They help with everything I might need. They serve me my breakfast lunch and dinner. My hubby doesn't have to do so much and I get to watch the little ones play. I have terrible osteoarthritis as well l. A little bit of prednisone is helping my P. M. R, and I, pray, it doesn't come back. May this be a year of no pain for all of us, and multiple blessings.
well it’s certainly a thank you from me - whilst I consider myself so much luckier than some who’ve been plagued so badly with this horrid disease for so long - I still value all the questions and answers on this forum. Down to 4 and 3.5 - but noticed a few aches and pains - minor - always hips and biceps - been hectic Christmas etc etc - so having a week on 5. But wishing you all a happy Twixtmas!!- on the run up to 2025 which I hope will be kind to all of you and yours.
Thank you .. Pro …( DL too ) I read all posts each and every day. I have since 2019. Massively stressful year for me , ongoing too.
A very big THANK YOU and a happy Christmas and a happy healthy and prosperous 2035 to you and the team.
I don't know how I missed this...a giant thank you....so glad you were on the train when I started my journey...and you are still there.💞💞
Merry Christmas One and All 
