Dear friends. You may remember my recent post telling you about the death of my darling daughter plus three surgeries in the works. Ptosis surgery is OKd and waiting for a date, hip referral has been made and waiting for an appointment, back surgery is scheduled for February 23. Terrible pain plus heart wrenching grief.
But that wasn’t enough. We were flooded on Sunday along with many others. The whole of our ground floor covered in water and now mud. We have lovely neighbours and we are OK. But I just can’t seem to cope. I am shaky, very achy, tearful of course, worried about all the work that I can’t do. Putting on a brave face. I am normally strong in a crisis.
I think I will have to increase my pred, very reluctantly because I had Avascular Necrosis. I am on 9 mg after 9 years and two severe flares. What do you suggest I take and for how long? Thank you so much for your help. I could look it up from your excellent notes but it’s beyond me at the moment.
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Nightingales
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So sorry to hear that - flooding is such a foul weather effect, because it isn't just water, it is mud and a lot of unmentionable stuff as well.
I'd suggest either using the Sick Day Rules - where you double your current dose for the duration of the stress, up to a maximum of 20mg. You would take 18mg. Or start with the flare protocol, add 5mg where you are now for up to a max of 2 weeks, so take 14mg. That would mean a bit less pred as you would just take it until the main stress is over, and if it is enough, that is a positive.
Are you insured for flood? Is so, make sure you contact the assessors soon, emphasise how unwell you are, and that you need assistance. When my daughter's flat had black water damage (a rat chewed the plastic toilet drainpipe), they were moved out while the work was done.
Thank you. Very helpful. Insurance has already visited and asked if we want to move but I think once we get dehumidifiers in and carpet up we will be OK. Just the thought of packing and moving out is to much. Thanks again. I will try the flare protocol and take another 5 right now.
I was flooded in 2019 whilst coping with PMR and OA. I could not have lived upstairs with dehumidifiers on 24/7 for two weeks and we didn’t have any mud just sewage from the drains. I packed our bags and moved to a hotel till the insurance sorted a rental property. The stress of that was enough and I didn’t have anything like your coping with. Stuff is replaceable. Hard to accept but a necessary evil. The insurance paid to get everything sorted I just had to tell them what I needed. I spent most of the 6 months resting avoiding flares at 10 mg. Away from my own bed and comfort zone. A lot of people lived upstairs once the electricity and gas was reinstated. The smell and dust and rebuilding was awful. Especially when the replastering began where the water had risen to. I wouldn’t stay it’s horrible watching the workmen and noise of machinery. Look after you. The material things rebuilding after a flood you can do slowly. All the best with what you choose to do. I do hope you feel better soon. My thoughts are with you.
Sorry you had to go through that. It’s an option for me. fortunately it’s floors only and not the walls or furniture. Thank you for your kind thoughts and advice.
My daughter treated it like a holiday!! It wasn't too far away and she had to feed the cats so fetched as required. Speaking of holiday - someone I know ended up in a beautiful holiday cottage somewhere lovely - so it is worth considering. As Estellemac says, dehumidifiers are a constant background noise and you don't know what it is like living in a building site if you haven't done it. I have more than once and believe me, it is no fun, And I was acting coordinator for the workmen as well as young and fit. As for plaster dust - took me nearly 2 years to fully get it out of the rest of the house!!!!! Do think about it.
Deeply sorry to hear about the loss of your daughter xx 💔💔 With your grief, illnesses and now flooding you must be so stressed…. Cannot help, but take each day at a time and be kind to yourself… good luck with everything x
I’m so sorry to hear this 🥲No wonder you feel so shaky, I’m not sure I’d cope as well as you are . Glad you’ll take extra pred short term and can only send you hugs and best wishes. Take care, you’ll get there 🤗🤗xx
Thanks so much for your kind words. I am not really coping. In fact I had a big breakdown after I wrote this. The effect of having talked about it and received help and kindness allowed me to express my emotions and give myself an afternoon in bed. I do have a lovely dog who insists on looking after me !
Sometimes breaking down, as you express it, is a necessary part of coping 😊 So glad you had the afternoon in bed, you can’t beat a warm dry bed and a dog! (Or cat, in my case).
We came back from skiing one NY to a flat fence ... Didn't notice it from the house as there were trees and bushes on our side - could only see it driving up the road the other side!!!
Fortunately only two panels out - one by back door was slotted back in by son and neighbour. The other one, by parking space is behind shrubs so I hadn't seen it... of course eagle-eyed son did when he arrived. He couldn't sort it, but it was slotted back in yesterday by local gardening guy [but it does need replacing]. has promised to do it within next 2 weeks as he knows my situation... had to lay it on a bit thick yesterday morning to get him round. So fingers crossed he does..
All concrete posts, so at least whole fence doesn't go in one fell swoop...
Yes. We live on a hill and have always been complacent about floods but this came from the back fields. A national disaster has been declared in our county in England. Hope you find your runaway fence!
I am so sorry to hear about the death of your daughter. What a traumatic time you are having with the recent flooding on top of everything else. As others have said do consider moving out if the insurers will pay for accommodation. My sister had to move out of her home after last year’s storms and it has taken a year to get things sorted (think it was more difficult it being a bungalow, every room ruined). Sending 🤗
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