Just what we could do with.....

[Sillydogsmum]

I thought I would share this fun video about Parkinsons Disease. Partly in solidarity with Grammy80 and partly to wish we had such a high profile group of people able to attract funds and research resources to our corner. It might just cheer up folks on a bit of a downer this weekend.

youtu.be/QU6BG1KBP3Y?featur...(Not working as expected?)

[PMRpro Ambassador]

Brilliant!!!! How did you find that?

The Behind the Scenes videos are great too.

[Sillydogsmum in reply to PMRpro]

I follow #sophiefromroumania on Twitter, her dad is Rory Cellan-Jones....

[PMRpro Ambassador in reply to Sillydogsmum]

Sorry - context????

[Sillydogsmum in reply to PMRpro]

Rory Cellan-Jones is one of the group on the video....formerly BBC tech correspondent. Has been on the radio a lot about Parkinsons.

[PMRpro Ambassador in reply to Sillydogsmum]

Ah so - don't listen to UK radio. Was this his idea?

[Sillydogsmum in reply to PMRpro]

Not sure, the group have met regularly for about 18 months (all have Parkinsons)and have put together a series of podcasts dealing with all aspects of Parkinsons - (Movers and Shakers). They have got a very good head of steam up and do presentations, head up academic symposia etc. Promoting better understanding, managing the illness, medications, research ideas etc etc.

[PMRpro Ambassador in reply to Sillydogsmum]

I thought they sounded a great group - every group has a Jeremy!!!

[Pangolin43]

Thank you for this. My mum had Parkinsons Disease 😍

[pata63 in reply to Pangolin43]

My father had Parkinsons too. This video brought me laughter and tears.

[piglette]

What a fantastic video. I am so impressed. Perhaps we should be doing a PMR/GCA video!!

[Sillydogsmum in reply to piglette]

I certainly think the profile and understanding of PMR GCA could do with raising; am pondering the possibilities 🧐. Something that would have value to patients , Primary and Secondary care.

[DorsetLady PMRGCAuk volunteer in reply to Sillydogsmum]

Are you a member of the charity.. and are you aware of what they actually do?

pmrgca.org.uk/about-us/pmrg...

This from the FAQs

healthunlocked.com/pmrgcauk...

[Sillydogsmum in reply to DorsetLady]

Im not a member so thanks for pointing me in that direction. I'll have a good read of it.

[DorsetLady PMRGCAuk volunteer in reply to Sillydogsmum]

Anyone can join - you don’t have to live in UK - the more the merrier..

[Sillydogsmum in reply to DorsetLady]

I'll try but one if the bugbears post Brexit is that UK retailers and the like won't accept UK or French bank cards registered to an address outside the UK or Channel islands. Its a complete pain.

[DorsetLady PMRGCAuk volunteer in reply to Sillydogsmum]

Then speak to  Fran_Benson -she’s the lady responsible for membership etc [she’s on here] - just send her a Chat - hopefully she can find a way round it -

Her profile -

healthunlocked.com/user/Fra...

[Sillydogsmum in reply to DorsetLady]

Thanks for that. It was my habit to order goodies online to send to French friends, such as fruit cake from a certain purveyor of same based in Harrogate, such a pity cant do it any more.

[DorsetLady PMRGCAuk volunteer in reply to Sillydogsmum]

Yes, there are a lot of downfalls since Br%€it - but best not get into that.🤦🏻‍♀️

[PMRpro Ambassador in reply to Sillydogsmum]

I suspect there are other reasons behind that - exports of such things cost the seller a lot of paperwork and are costly. I have everything - an Italian bank card registered here, a UK bank card registered here and a UK bankcard registered to a UK address. But I do all I can to avoid buying online!!! However, I have paid things online with the UK bankcard registered to here.

[Sillydogsmum in reply to PMRpro]

Oddly florists in the UK don't bat an eyelid, suspect they might lose to much overseas trade.

[Angelsmummy]

Sad but absolutely wonderful.Well done you!You are right,wish we had something like this,Maybe somebody somewhere could find a way??Not sure if I am allowed to say this but as I said Xmas is a time for giving ,of course everybody’s circumstances are different and no way would I like anybody to feel pressured,but if everybody who is able to make a small donation to our wonderful group,what a help that would be eh?Am now going to watch the video again!!xxx❤️

[agingfeminist]

an amazing video...thanks for sharing. made me laugh and cry...

[Leafsong66]

Just what I needed! I have just started the ball rolling for my beloved Dad to be investigated for this terrible disease.

[Poshdog]

Well done all participants and you for sending it to us - brilliant. My dad had Parkinsons, unfortunately no longer with us, he would have enjoyed video immensely. Xx

[Sophiestree]

Fabulous.... I wonder with Rory's tweets that this will get noticed more.

[Angelsmummy in reply to Sophiestree]

Let’s hope so eh?🌼😜

[Frewen1]

that’s wonderful

[Mfaepink1973]

Fantastic! I work in a care home and a couple of our residents have Parkinson’s. This video made me more aware of how it affects them than any amount of workplace training videos have. Thanks for sharing it.

[Sillydogsmum in reply to Mfaepink1973]

I messaged Rory about getting their video into training in the Care Sector and he asked me how best to do that. Have you any suggestions? Is training centrally organised in the public and private sector or is it dependent on each provider? Many thanks for any advice you or anyone else might be able to give.

[Rusticana]

Thank you for sharing such an uplifting video. It certainly brought tears to my eyes - both joyful and sad. My darling Mum had Parkinsons for over 15 years. She lived to an amazing 91 years young and would have loved to have joined in the video - she played the piano and organ. An inspiration to everyone who came into her orbit; and despite the disease interfering with her mobility it couldn't take away her joyful spirit.