RSV vaccination

[Cinka]

Hi all. Can those of us on long-term prednisolone safely receive RSV?Thanks 😊

[DorsetLady PMRGCAuk volunteer]

It’s fine , it’s not a live vaccine -but if you are concerned then discuss with your GP -

healthunlocked.com/pmrgcauk....

[Cinka in reply to DorsetLady]

Thank you, DorsetLady. Hope all is well with you? 🙂

[DorsetLady PMRGCAuk volunteer in reply to Cinka]

Good thanks.. had RSV vaccine a few weeks ago, all good [but no longer on Pred]. Flu and Covid booster on the cards next month…

[Cinka in reply to DorsetLady]

Good to hear you're now off Pred. How long were you taking it in total? My endocrinologist doesn't think my adrenals will kick in because I've been on Pred for 7 years .. 🙂

[DorsetLady PMRGCAuk volunteer in reply to Cinka]

Been off it since September 2016… but like you had GCA, so some pretty high doses initially.

Glad to say, adrenals are tickety -boo…

Endo may be correct in their thinking, but you never know.

[PMRpro Ambassador in reply to Cinka]

There is someone on the forum who recently posted they had got off pred after over 7 years. No-one can tell but it takes a lot longer than they think for the adrenals to recover, they aren't patient enough.

[Cinka in reply to PMRpro]

Worth knowing and passing on to the Endo! Thanks, PRMpro. Hope all is well with you? 🙂

[PMRpro Ambassador in reply to Cinka]

Would be a lot better if the weather bucked up!!! We usually get wonderful Septembers and Octobers. September has been awful ...

[Cinka in reply to PMRpro]

Pretty much the same here.. rain, rain and more rain 🌧.. used to be just April showers.. 😏 Take care,🙂

[PMRpro Ambassador in reply to Cinka]

We've had 3inches in the last 3 days! And not a peek of sun ...

[Cinka in reply to PMRpro]

We've had a deluge overnight here in Shropshire 😶 local football pitch under water so no match at the weekend, drivers rescued from cars in flooded streets, some schools closed, some residents have had to be taken from their homes to a place of safety and a nursing home was evacuated.. it's sunny this morning, though.. 😏 .. Stay safe 🙂

[Motida in reply to DorsetLady]

Interesting about the RSV. I am 81+ and have been refused it due to age. Am going to have the flu first and think about the covid a bit later. 🤔

[PMRpro Ambassador in reply to Motida]

That is because it is being done as a roll-out and they have this weird concept of if you missed it because you are a few weeks too old - you don't get it!!! Lord knows why. If getting older means you don't NEED it, why don't they just wait a bit longer and save money!

[Highlandtiger in reply to PMRpro]

The Covidence webinar for September deals with the RSV vaccine and tries to explain why various cohorts get it and others don’t. The aged 80+ cohort in the trial seems to have been very small

youtube.com/watch?v=pFttjMD...(Not working as expected?)

[PMRpro Ambassador in reply to Highlandtiger]

It always is - and then they decide they don't need something either ...

[Cinka in reply to Motida]

We have to be between 75-79 to be eligible .. 🤔 .. wonder who makes these strange calculations 🙄

[DorsetLady PMRGCAuk volunteer in reply to Cinka]

Some Whitehall whizzkid who think life ends at 80!

I speak from experience - not as a Whitehall whizzkid I hasten to add, but as someone who had to work with their bonkers ideas for 30 odd years.😳

[Cinka in reply to DorsetLady]

It just keeps gettin' better.. 🙄 xx

[DorsetLady PMRGCAuk volunteer in reply to Motida]

Well the RSV is a one-off this year and specified 75-79 age group..

[Bcol]

No personal experience I'm afraid, I've got mine on Saturday, but been off Pred for a few weeks now. Covid and Flu at beginning of November.

[Cinka in reply to Bcol]

Thank you, Bcol 🙂

[Antoinette48]

hello Cinka! I had my vaccination a week ago and I have had no problems,not even a sore arm..I am currently taking 2 mgs of Pred.Due for Flu and and Covid 7th and the 14th of October.

[Cinka in reply to Antoinette48]

Glad you had no ill effects! Thanks for your reply 👍 🙂

[Miacaro45]

I did not have a problem and I have been on Prednisone for 4 years at high doses. Consult your GP if unsure. Only the best to you.

[Cinka in reply to Miacaro45]

Thank you. And to you 🙂

[Poshcards]

They ran out at my surgery, so didnt have one!

[Cinka in reply to Poshcards]

.. and they're not getting more vaccines in .. ? 🥴

[Rugger]

I had the RSV vaccine 3 days ago and not even a sore arm. I hope it's the same for you.

[Cinka in reply to Rugger]

Thank you. Me too! 😏

[herdysheep]

Been on pred since 2012. Had my jab few weeks ago. No probs, not even sore arm

[Cinka in reply to herdysheep]

Glad to hear! That's a bonus, not having a sore arm - can be quite painful sometimes! 😒