FLARE FROM A MIGRAINE?: I have PMR & GCA, both... - PMRGCAuk

PMRGCAuk

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FLARE FROM A MIGRAINE?

LIVEORDIEHEREIAM profile image
3 Replies

I have PMR & GCA, both diagnosed in 2020. Early on, I saw on here that visual distortions were a sign of the GCA ramping up, so I would increase my preds for a while to compensate when it happened. That probably happened around a dozen times over the years. Then, six months ago, someone posted here an exact description of my visual distortions, saying that this is what a visual migraine was like. I was blown out of the water! I never had any inkling!

My question is: despite the cause of my visual distortions, should I still up my dose of pred when this happens? My underlying thought is that stress can lead to a flare and a migraine is a stress indicator isn't it?

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LIVEORDIEHEREIAM profile image
LIVEORDIEHEREIAM
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PMRpro profile image
PMRproAmbassador

Have you ever discussed it with a doctor? It would make sense to be sure these are visual migraines - if they are I don't think there is a role for pred but there are instances where visual effects can be a sign of something serious.

mayoclinic.org/diseases-con...

LIVEORDIEHEREIAM profile image
LIVEORDIEHEREIAM in reply toPMRpro

Yes. Typical Scintillating scotoma or visual migraine. Both eyes, so not likely to be serious.

Thanks. My journey to club zero should proceed much better now!

Who needs doctors when we have you!?😍😀

PMRpro profile image
PMRproAmbassador in reply toLIVEORDIEHEREIAM

That's good - inasmuch as having something can be GOOD!!!

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