prednisone tapering : I have been struggling to... - PMRGCAuk

PMRGCAuk

21,084 members39,881 posts

prednisone tapering

Elvied profile image
17 Replies

I have been struggling to reduce below 13 mgs , but at 12.5now and happy

My daughter took me to a psychic and her guide told me to listen to Tuning Fork meditations.

I’m listening to an app called Insight Timer and they have Tuning Fork meditations

It’s probably placebo but I fancy I’m feeling less withdrawal symptoms.

Give it a try . The guide said it was great for any form of addiction

Written by
Elvied profile image
Elvied
To view profiles and participate in discussions please or .
Read more about...
17 Replies
Bunchberry profile image
Bunchberry

I’ve also added a daily meditation to my life as part of my PMR convalescence! Started because I had been trying to lie down and rest for half an hour in the afternoon but would get restless and go on my phone. So I started using a meditation app and find it allows me to lie still for the half hour. I feel more restored when I get up. It’s nice.

Elvied profile image
Elvied in reply to Bunchberry

Try this , the app claims it can alter DNA .

PMRpro profile image
PMRproAmbassador in reply to Elvied

At that point it would have lost me. If it has a calming effect, I'm all for it, different things work for different people. But that sort of claim does it no favours in the mainstream.

Oh-my profile image
Oh-my in reply to PMRpro

I think you can have epigenetic changes to a gene. This was found in extreme cases such as Holocaust survivers and famine. And these were then be passed down the generations. But these are extreme events. If medication can stop these changes.... Hmm. Well, maybe....

PMRpro profile image
PMRproAmbassador in reply to Oh-my

Depends which way the change is doesn't it? And look at the panic over the mRNA vaccines which DON'T have any effect on DNA

Oh-my profile image
Oh-my in reply to PMRpro

Unfortunately Covid -19 did. It was found to have caused epigenetic changes in the lungs of those that died. It seems negative changes are easy to bring about. Reversing it is completely a different matter.

random901 profile image
random901

Thanks for this info, Elvied. Like Bunchberry, I fail to get proper rest post-lunch because I feel i should be doing something "constructive". But of course meditation is constructive, isn't it?

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply to random901

Unfortunately modern life seems to insist we should be doing "something" all the time - what's wrong with having half and hour of quiet - and doing nothing .. except recuperate/regenerate. 😊

It just needs a change of mindset. Many would be a lot better for it...

random901 profile image
random901 in reply to DorsetLady

Indeed. I'm only just learning. I'm quite sure my previous "driven" self caused unnecessary stress.

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply to random901

Absolutely-and you aren’t alone in realising that… but such is life 😊

Koalajane profile image
Koalajane

if it helps you all well and good. We all find our own way of coping and it is not for me

Indigo2417 profile image
Indigo2417

I’ve been using Insight Timer for about 3 years now, but have not come across the tuning fork. I like to do a meditation before I start my day. I’ve tried a few different ones and I bookmark the ones that I like, particularly the ones focussing on breathing.

Gimme profile image
Gimme

I'm not very good at meditation. I invariably fall asleep.

Indigo2417 profile image
Indigo2417 in reply to Gimme

That’s why I like to do mine in the morning. However, it can come in handy if you are struggling with insomnia. Concentrating on breathing does sometimes help me to get back to sleep if I wake up and my mind starts getting busy.

Alebeau profile image
Alebeau

This would not be good for me as I have tinnitus and that tuning fork is very similar to the sound in my head - I prefer listening to relaxing music instead - mostly for sleeping.

AtopicGuy profile image
AtopicGuy

Don't knock it! The placebo effect is the greatest medicine never invented!

Miserere profile image
Miserere

I learned TM some 20 years ago and find that helps.

Not what you're looking for?

You may also like...

Tapering Prednisone

I've been on this site now for about 1 week, and I've found a lot of interesting information. I...

Help with tapering Prednisone

I was diagnosed with PMR finally in Oct 23 after ending up in hospital unable to move. Doctors have...

Tapering prednisone on too much

I hope someone can give me advice on is in the same boat. Dec2017 diagnosed PMR at emerg. Given 15...

Tapering on Prednisone

Hi All, I would appreciate if someone can let me know if I am tapering down from Prednisone...

prednisone reduction advice.

DL. Could you send me a link to the reduction guide. I have managed to reduce gradually from 15mg...