dropping from 15 to 10: 9 weeks in to my Pred... - PMRGCAuk

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dropping from 15 to 10

Scaredofpred profile image
7 Replies

9 weeks in to my Pred journey and following DorsetLady’s excellent tapering plan.

Got to 12.5: then started intermittent change to10. Result headache, fatigue. Now cutting 2.5 pill in half ( still following intermittent plan). Headache and fatigue gone, but still resting.

No monitoring from doctor, surgery, no follow up with Rheumatologist, would have been in real trouble without the wonderful help offered on here, but have just paid for a full blood count. Thank you all.

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Scaredofpred profile image
Scaredofpred
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7 Replies
DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

Maybe just tread water in the tapering - so repeating current stage until you are sure you are okay - and also get results of blood tests. Really is no rush… so make sure you are really alright… before attempt to go any lower.

PMRpro profile image
PMRproAmbassador

Slowly, slowly.

I think you also need to get the GP practice to do their job. Providing forms for blood tests doesn't entail ongoing input from the GP themself - it is usually a nurse who takes bloods. You shouldn't need to pay for the tests. If no-one else, speak to the Practice Manager.

Scaredofpred profile image
Scaredofpred in reply to PMRpro

Many thanks. Actually had pre paid bi annual medical booked so added on the full count which I paid for. Will push the practice a bit harder. So grateful to you all.

PMRpro profile image
PMRproAmbassador in reply to Scaredofpred

Fair enough - though surprised it wasn't part of an annual medical!

Hopingsail profile image
Hopingsail

just picking up on your plan to cut 2.5 Pmg Pred in half: Is that coated Pred? Cutting coated pills is , I think, not recommended as they often shatter and then one can’t be certain of dose actually received.

Don’t rush! As my old Dad used to say: ‘softly, softly catches the monkey’. 10% rule is a good one.

PMRpro profile image
PMRproAmbassador in reply to Hopingsail

It is more that by cutting them you are losing their USP: the coating protects the stomach from the pred which is thought to irritate the stomach lining. When you cut them that exposes the pred to the stomach - or vice versa however you want to look at it!

herdysheep profile image
herdysheep

I think the issue of cutting coated pred is that it renders the gastro resistant bit null and void. Ie no protection

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