Rheumy very supportive!! on tapering: Rheumy phone... - PMRGCAuk

PMRGCAuk

21,324 members40,437 posts

Rheumy very supportive!! on tapering

Temoral profile image
8 Replies

Rheumy phone appt today quite surprising. After synth. test, my results were very good...expected to be 200 before the synth injection, rising to 500 on second blood test. Mine were 429 , rising to 774. He concluded that adrenals were coming to life! Also supported my DSNS tapering, saying that many would get to zero in 3 months, but would expect me to take longer...infact as long as it takes, and booked the next appt for June. I can only say that he has had a month's study leave...perhaps he has been on the forum researching tapering and how individual we are with reactions to both the condition and the meds. Round of applause for his new sensitive approach. 👍

Written by
Temoral profile image
Temoral
To view profiles and participate in discussions please or .
Read more about...
8 Replies
PMRpro profile image
PMRproAmbassador

Is this a change in him then?

Temoral profile image
Temoral in reply toPMRpro

Definitely...he was for alternate day tapering from 3 to 2mg or more to get to zero ASAP.

PMRpro profile image
PMRproAmbassador in reply toTemoral

Blimey - wonder if there has been a lightning strike ...

Temoral profile image
Temoral in reply toPMRpro

😉⚡

PMRpro profile image
PMRproAmbassador in reply toTemoral

:)

SheffieldJane profile image
SheffieldJane

Golly! That’s impressive.

Temoral profile image
Temoral in reply toSheffieldJane

I am still surprised 😮

mackerelboats profile image
mackerelboats

Quite a change from my Rheumatologist. Hospital visit yesterday. I saw a "Junior Doctor " After questioning me about my medical history (Ovarian cancer 9 years ago, 2 TIAs, stroke, then heart attack 5 years ago, Psoriasis (another autoimmune illness and I am due to start a biologic in the next few months and Polymyalgia Rheumatica diagnosed March 2020) she went to talk to her "Supervisor ". Message from him...reduce by .5mg a month until off Predisolone. Message from me... I will reduce by .5mg (as I am doing and at moment on 7mg) every 2 months and ONLY if I am pain free!I don't know what his reaction was!

But so pleased for you that your Rheumatologist has understanding of this %$#@& illness.

Not what you're looking for?

You may also like...

Help with rheumy phone call tomo

Hi Everyone. 3 weeks ago, had GCA flare after perfect storm of Moderna jab, flu, reaching 2.75...
Temoral profile image

good Rheumy, better Rheumy, tapering & Leflunomide

A good news story. My Rheumy retired suddenly recently to my dismay as she listened etc, but her...
Japsquar profile image

Update on tapering

One of the gals asked if I would update my progress or process..it depends on the day what I call...
Grammy80 profile image

Tapering Prednisone

I've been on this site now for about 1 week, and I've found a lot of interesting information. I...
RheaV profile image

Rheumy appt....fighting my corner..

Hello fellow warriors...tapering at 8.5. Rheumy appt last Friday...I have calmed down. Knew it was...
Temoral profile image

Moderation team

SophieMB profile image
SophieMBPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.