So I SAW the GP at my surgery today for the first time in 18 months.
I will keep this brief: she confirmed the Orthostatic diagnosis from my hospital experience. She listened to my story and dismissed any possible AI involvement, glossed over Stills, said this new episode had no bearing on the malaise etc that started in February with locum saying cancer but that the scan would take place at some point and that it’s up to me if I continue with the PPI. She ignore my blurred eye neck pain saying go to optician.
I’ve been extensively tested on NHS and don’t think I can expect more. I have repeat scripts for what I need and at least know the cause of the dizziness.
Thank you all for your advice and help.
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Stills
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Do go to a well equipped optician as advised! Well I am glad you’ve been seen and your dizziness diagnosed and is being treated. You still seem a bit cast adrift to me though.
I will SJ. You’re right I do feel cast adrift but also that I’ve had good investigations by NHS and they found an issue, treated it but not discovered yet the cause. There is still the blood test back in February when new symptoms started that flagged cancer on my mind but later bloods didn’t show it so it’s being ignored so guess I just have to forget that. Should be a relief really. As I said in another reply none of this would matter if I felt better but all symptoms are still present and incorrect 😜
She should be doing a referral - but do please be very careful if it doesn't improve. I was visiting my quadraplegic friend yesterday - he came out of the bathroom, the door was at rightangles to the top of a spiral stair which he toppled down. Unstable break of C3/C4.
No - sorry wasn't clear - it happened nearly 3 years ago, during Covid which meat restricted visiting. That was HOW it happened. a simple dizzy spell, he'd had had a few, ignored by the doctors. He has been quadriplegic since then. He has a little use of his hands so can use a computer and operate an amazing wheelchair but is entirely dependent on 24 hour care. And his wife's life turned upside down too - including selling up and moving house on her own. The only consolation is he still has his brain working normally.
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Update! 
Visit to endocrinologist and Prednisone at wee hours. 
Every 24 hours. Not 25.
