Hello folks ,
I haven’t posted for a while . Have read and checked in though almost daily .
Have not been feeling to good of late , can’t seem to get my pain under control .
I have a lovely Doc that has seeing me/ or phoning me .
She tried to get me a rheumatologist appointment , they said they would not see me whilst on steroids as they didn’t think I have PMR ,
I know from reading your posts that this does happen not every one’s bloods show inflammation .
One set of bloods taken a few weeks ago showed some inflammation , I think that was due to my knee being very painfull and swollen this is a new thing with me .
I am in a quandary don’t know what to believe any more .
I have been reducing my steroids on docs orders started on 20 mg in August 22.
Did feel so much better could move better, kneel down , not struggle to get up once I had sat down . Turn over in bed without feeling I was stuck to the sheets .
Put a dress on over my head .
With me I had to keep moving during the day the feeling of my body seizing up always came on early evening .
Although have suffered almost daily with buttock pain of late , that’s bad .
Can’t get comfortable in bed each side aches.
I have had to retire from my work , can’t keep losing time it’s not fair on them .
I am now on 5 msg from 7.5 started last Thursday , I feel crap weird .
I know about the tapering plan , did say to my doctor that you should not do this quickly , she wants me to drop to 4 mg after 4 weeks .
On Friday evening I felt unwell got sick , don’t know why or where that came from , I hate being sick I’m a wuss .
So that’s me mixed up confused , should I ignore my docs instructions and take more steroids is that what’s wrong with me , I will get back to my Doctor to let her know how I am but just wanted your advice please
I apologise it’s a long post .