Is PMR a Caucasian curse? : Seems so... Is anyone... - PMRGCAuk

PMRGCAuk

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Is PMR a Caucasian curse?

christi48 profile image
16 Replies

Seems so... Is anyone on this forum a person of color? Does anyone know of a person of color who has PMR?

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christi48 profile image
christi48
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16 Replies
SheffieldJane profile image
SheffieldJane

I believe that there’s people in this group of different racial heritage. There certainly has been over the years. I believe that the disease originates with people from Viking heritage. Northern European Ancestry. DorsetLady is the one to ask.

Suet3942 profile image
Suet3942 in reply toSheffieldJane

Hi Jane. I’ve just had my dna results and I’m 22% Scandinavian! My maternal grandfather was illegitimate so who knows!

SheffieldJane profile image
SheffieldJane in reply toSuet3942

How exciting!

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

It is predominant those of Northern European descent- especially Scandinavian- but those adventurous Vikings, and their subsequent descendants got a long way around the world.

healthunlocked.com/pmrgcauk...

As SheffieldJane has said there certainly are members of different racial heritage.

Bluey-1 profile image
Bluey-1 in reply toDorsetLady

Interesting, my DNA test indicated 7% Norway, 3% Sweden & Denmark. 6% Scotland. Those Vikings did get around…

autumnlass profile image
autumnlass in reply toBluey-1

Indeed they did!! The Exfoliation Glaucoma which I have is related to people of Scandinavian heritage as well. Double whammy. The eye consultant asked me that last summer. All my family going back for centuries I believe are Welsh!

Bluey-1 profile image
Bluey-1 in reply toautumnlass

I am 32% Welsh from the paternal side of my mother’s family. I was brought up on the Welsh side of the English border.

Bluey-1 profile image
Bluey-1 in reply toautumnlass

I surprisingly found it easy to trace my paternal grandparents family even though it was a common Welsh surname. They stayed in Wales.

autumnlass profile image
autumnlass in reply toBluey-1

Interesting! My first cousin who has lived in Wales all her life, and like you, has traced all our paternal grandparents family too. All of our antecedents lived in Wales as well all their lives … with one exception a great grandfather, an ecclesiastical composer moved to America but returned to Wales I think before he died. I have lovely conversations with my uncle in Wales about my heritage … and had sent me unseen photographs of great grannies!

Gaz227 profile image
Gaz227

that’s a very interesting observation , my DNA was 10 % Norwegian , and a chap I met with this same issue said his ancestors where Scandinavian . Originally there would have been very few if any people of colour from that part of the world, so almost definitely a connection , I think it all comes down to one or two rouge active genes from that small percent .

Manihiki profile image
Manihiki

I am part Polynesian

marionofnorwich profile image
marionofnorwich

I have never had a DNA test but know that my grandfather was Portuguese Goan i have a very mixed gene pool but very little that points northwards. Yorkshire great grandfather is nearest, Irish great grandmother

PMRpro profile image
PMRproAmbassador

The incidence of PMR in persons of colour is very low, A study undertaken in Olmsted County, Minnesota found that only 1% of the patients were of Black or Asian heritage. I suppose the figures in other countries might differ and the second link is a case report from India that seems to think it is underdiagnosed and points out the rate is thought to be particularly low in Japan. However, young Asian women were found to develop Takayasu's arteritis which is identical to GCA in many respects - though it is not exclusive to Asians or females in fact and now is known to occur in all ethnic groups. It is rare.

ncbi.nlm.nih.gov/pmc/articl...

journals.lww.com/annalsofia...

Joseph14612 profile image
Joseph14612

I am Puerto Rican...born in P.R., living in US but am light skinned....

Suffererc profile image
Suffererc

The surgeon doing my hall bladder removal says his mother has PMR 14 years and tweaks her medication as and when 😊

Suffererc profile image
Suffererc in reply toSuffererc

to add he is Asian

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