I have recently been prescribed the above medication to reduce my ocular pressure due to complications during cataract surgery. My muscles have ached so much that I am glad to say I will be taking my last tablet in an hour. It did say in the patient leaflet that this could happen but fortunately none of the other side effects have happened and my pressures have come down. The next op to continue the procedure is on Monday the 27 February so I have my fingers crossed that all will go well and no complications will happen this time.
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Koalajane
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This is a vitrectomy to take parts of the cataract that went behind the eye away and then to put a lens back in! I have my fingers crossed and hope I can lay still for the op which is done under local anaesthetic. Thanks for the good luck
thanks Jane, wishing and hoping things go smoothly this time and that I have a lens in my eye when I come out of theatre! I couldn’t believe when I went to the eye clinic for assessment that they checked my visual acuity in my eye that had no lens in But I saw a letter!
Adding my good wishes for a successful op! Well done for persevering with the Diamox. You have done better than I did - I was unable to continue with it after a few days as I felt terrible - drugged and dizzy, tripping over things etc.
I mentioned to my eye consultant when she rang that it mentioned that it would have an effect on the prednisolone and she very nicely said but you really need to take it although I had been told not to take it if I seemed to be allergic to it, fortunately it is just the extra aches that I have struggled with and I have now finished the course. And have felt extremely fatigued. I have had trouble tripping over things but that is probably getting used to the lack of focus in the eye without the lens it did the job as 3 days after starting it my eye pressure was normal thank goodness. Still on steroid eye drops for another 10 days and whatever they say after the op on Monday. Fingers crossed there abe no complications with this one.
Hi. I posted about Diamox a couple of weeks ago as I felt so awful on it. After the first couple of days I carried on for 3 more days on a half dose before stopping it completely and keeping everything crossed that, with drops, it had been enough to reduce the pressure. Check up last week showed the pressure had dropped from 35 to 18. Now just have to hope it stays down and that the odeama doesn’t return. I’ve already had 10 injections for this and it never gets easier ☹️
Luckily my dose was for only 5 days. I have polymyalgia rheumatica and so take prednisolone. It did increase my aches and pains.Hopefully it will be out of my system soon. My pressure had dropped 3 days later and I am still taking Maxidex which are steroid drops.
I have PMR too (6 years) and take pred - have had to increase an extra 5mg to get over the Diamox! I got the full works, nausea, tingling, woolly head, increased pain and horrible fatigue. Getting back on track now. Hope you are too.
yes I had the fatigue, but doing nothing much whilst waiting for this next op than goodness!. Strangely yesterday afternoon my fingertips were tingling away. I don’t usually get the aches going up the stairs until later in the day but they came very early in the day, did it take long for them to go after finishing the Diamox?
I have type 2 diabetes (been in remission since 6 months after diagnosis) and due to not exercising so much my sugars are up a bit.
I was still tingling 2 days after I stopped taking the tablets. Couldn’t see me getting over the pains and fatigue unless I literally stopped doing anything at all (and that just isn’t possible) which is why I opted to increase the pred for 5 days. I am building in some time out too - when I can 😂
I am feeling completely fatigued today and still aching, also I seem to have lost my appetite. Also hoping I will feel better tomorrow and that they don’t have to give me these tablets after my vitrectomy or I will be taking to my bed!
That's rotten luck and hope all goes well for next procedure. Remember your breathing exercises and perhaps visualise in mind a good walk, perhaps when on holiday, step by step. Hope you are soon bright eyed but may be not bushy tailed
thank you, no I think that is a good idea. Not sure how long it will take but I was in theatre for over an hour last Friday. I will think of one of my walks and remember my breathing exercises. I am quite happy to be bright eyed but not too sure about bushy tailed!
Sorry you have had these troubles. Hope things get fixed up with no more drama. My wife Jan has had a similar journey.
First the cataract operation at a private clinic went wrong and a pressure spike happened a few days before Christmas . She had an emergency vitrectomy right away in the pubic hospital. I'm not sure what drug they had her on for the pressure at that time. I know she had PredForte (prednisolone) drops and I was in charge of administering them on a complicated timetable with other drops which were antibiotics. I'm the one with PMR so pred was a familiar friend.
Some months later the lens detached and fell in towards the retina. We were having lunch at a cafe and she suddenly announced her left eye had gone out of focus and it was like she was looking underwater. Very scary. Off to our Optometrist to have a look as they were open on the Saturday morning. They wrote it up for the private eye clinic who did the original surgery. She refused to have the remedial work done by the original surgeon and switched to a woman who she felt better about. She had an op like yours where they had to go in and fish out the pieces of lens. They put a new one in. There was mention of the back of the capsule in her left eye being incomplete so they placed the lens in front of the capsule. We didn't know what that meant, and it was done without much by way of informed consent. Maybe they decided that when she was in the operating theatre and I wasn't around, but it was all a blur as far as both of us were concerned.
Some weeks later the new lens got caught up in her iris after her iris had been fully open. Her eye looked like a goat eye with a slit rather than a properly round pupil. Another rush to the eye clinic! She continues to have pressure issues, but she also has a family history of glaucoma (mother and brother). Now she is on an older medicine for glaucoma called Pilocarpine to keep her iris from dilating too much as well as lowering the pressure. That seems to do the trick.
And finish the story, the first eye surgeon who botched the cataract op is now on trial for murdering his wife. So her unease with the first eye surgeon turns out to have been prescient.
Apparently there is a 2% chance that whar happened to me can happen and I am at a greater risk because of having had njections for macular oedema, my pressure was down in 3 days so I am able to have the op to remove the cataract piece and put the lens in. He seemed to be saying it would go in a case. The opthamologist seemed keen to do it but his consultant returns from holiday on Monday when he should be overseeing him so hopefully my doctor will have contacted him by then. It is being done under local anaesthetic.
The drops are a pain. The steroid ones are every 2 hours and the antibiotic ones are 4 times a day. I struggle with the antibiotic ones as they have to be kept in the fridge and the plastic is hard. I struggled extra hard today so my husband offered to do it and told me what a plonker I was. I couldn’t do them because I hadn’t taken the cap off! I was given tablets which bought the pressure down
Hope your wife has no more problems.
Interesting to know that others have complications too!
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as far as both of us were concerned. 
I'm shocked !
GOOD NEWS FOR ONCE
Those new to PMR
Hydroxychloroquine 4 weeks in.
