Doctors Appointment on Tuesday Re MRI

[Bcol]

Evening all. I have a doctors appointment in Tuesday regarding my recent MRI results, however there are other things I need to chat about as well. Since getting down to 2.5 mg my hands have been becoming more painful, fingers and joints, itchy palms etc. In fact, all the symptoms of of my CTS coming back. But, I guess it could be Arthritis. Co-Codamol doesn't help. I had this before when I got to 5mg and doc and I agreed to go back to 10mg and see if the problem went away and it did. So the question is back to 10mg and then an even slower taper down or something different? I personally have no problems with going back to 10mg if that sorts the problem, as any side effects I have from Pred are negligable.

I also have a real problem with my right foot but I'm pretty sure that's an OA problem, although I guess it could all be a neuropathy problem tied in with the MRI results.

Quite a lot of stress with festival organisation, not helped by upcoming industrial action and very poorly bowwow.

[SheffieldJane]

I have been having painful fingers a deeply itchy palms. I have never had carpal tunnel syndrome and was able to get relief by taking an antihistamine. It was like my blood was itchy.

[Bridge31 in reply to SheffieldJane]

I think Bcol meant his dog

[Bcol in reply to Bridge31]

He did. 🙂🙂

[krillemy in reply to SheffieldJane]

I have had/have the exact same with deeply itchy palms, but also the top of my feetand angles. I am tapeing and it has come back worse. Comes in waves but more if I have used the hands and feet a lot that day. I also only last week tryed antihistamin and it worked!

Do you know why we have it? I don´t think is linked to PMR, but I am glad that I am not alone with this as I really cant function when it happens.😀

[DorsetLady PMRGCAuk volunteer]

Hi,

Yes very stressful with Meg….without everything else as well. Hopefully you don’t need to go as high as 10mg, but as you say, if needs must…and all that.

Hope you can get a plan to help…

[Pixix]

Snap…sort of! As I decreased in pred for the first time, as soon as I was below 5mg I had very bad pains in hands & feet. I saw a consultant who referred me to podiatry for feet & a hand specialist. It’s all osteoarthritis. It’s been said that the higher amount ps of pred had masked it starting, so when I started the pains it was worse than a gradual onset. I was also diagnosed with carpal tunnel syndrome, when I was on around 10mg. When I got down to 4mg last time I had a huge flare, or adrenal issues, my doctor advised me to go to 10mg (I had other new medical issues at the same time). I’ve come down from 10mg & currently at 4mg. I spent three months at 5mg as I was quite poorly. But I’ve been in 4mg for 2 weeks, & it’s OK. My blood tests this week have come back with ‘see doctor’, & some are above the norm, & some are borderline & have to be repeated. My Dr asked for the tests…I have a one hour long appointment with him this afternoon, to find out what else, apart from PMR, is going on. Sorry for long comment, just thought my story may help, & I’m so so sorry about your dog, I’ve lost my heart to our neighbour’s puppy, who stays with us sometimes. S x

[Bcol in reply to Pixix]

Hi Pixix, Yey, totally agree about the foot/feet being OA. Was under podiatry a few years ago, bones in my left foot already fused and screwed together, so suspect the right foot is similar. The CTS was sorted at 10mg and didn't return until a lot later this time, so happy to go back up and try again but will see what docs says Tuesday. Given the MRI he may have some different ideas. Bloods have been fine for a long time.

[Pixix in reply to Bcol]

Good news re bloods, good luck with rest! I have annual podiatry appointment on Monday, they made me shoe inserts - orthotics - after taking impressions of my feet, & they help keep the pressure off my toes when I walk! Sounds as if you know a lot about feet, though!

[PMRpro Ambassador]

But presumably the CTS was OK at higher doses? Maybe a flare attack and then stick at 3mg rather than 2.5mg? Or wherever it was the CTS reappeared. And wait for summer ...

[Bcol in reply to PMRpro]

Yey, that is a good point, it was pretty stable at 5.0mg so might try going back to there to see if it helps before the more drastic step. Thank you

[Bcol]

Hi all, update on docs appt. We both agreed that we need to do nothing about the MRI asit's not a problem at the moment but we have the background for when things happen in the future. Going to try 5mg for a while to see if CPS improves. Finally the sad part Meg started her journey across the Rainbow Bridge this afternoon. 😢😢( the wine will be good and copious tonight )

[DorsetLady PMRGCAuk volunteer in reply to Bcol]

Hi,

so sorry to hear about Meg, sure you’re devastated- and putting a brave face on…enjoy the wine….and the good memories..🌸

[Highlandtiger in reply to Bcol]

So sorry to hear about Meg. It’s always heartbreaking when you lose them. But she’s had a lovely life with a loving owner and that’s something to celebrate. 🌈 ❤️

[PMRpro Ambassador in reply to Bcol]

Hugs

[HeronNS in reply to Bcol]

So sorry. 🌷