hi Everyone and HNY. I’ve had PMG for 18 months now. In the last 6 months I have been trying to get the pred down. Have tried twice to get below 7.5 on the DSNS but have flared. Back to 7.5. When do you think I should try again. How long should I leave between attempts.
thanks everyone
Written by
Storm-boy
To view profiles and participate in discussions please or .
see you managed a reduction from 8-7mg a couple of months ago, but did mention a few twinges……and this was my advice -
Certainly reducing by. 0.5mg from now on would be a good idea - but maybe not immediately. If you had a few twinges on last taper perhaps staying at 7mg for a few weeks would be sensible, PMR and adrenal wise.
So how come you are at 7.5mg?…and did you try reducing whilst you still had some niggles…not a good idea as that’s usually a sign there’s something amiss.
Make sure you are really painfree before you consider reducing…and only you know when that is.
Adrenal stuttering may be making it a bit more difficult as well - see this -
Yes I got to 7 but after a couple of weeks twinges started to return so felt 7.5 was probably right for me. Feel absolutely great at 7.5. Will try to to reduce by .5 in a few weeks
When you "fail" a couple of times at the same dose it is a sign you have reached the target: the lowest effective dose. However slowly you taper you won't get past that until the underlying disease process has reduced a bit further,
I think when you get there it is worth settling at that dose for at least a few months before trying the next 1/2mg. Things in PMR tend not to change overnight so you can enjoy a rest from the stress of tapering and concentrate on other things.
I was started on 20mg for PMR on 13-Apr-19 and tapered down to 5mg without incident. I was on 5mg from 16-Oct-19 and tried to taper to 4.5mg starting 30-Dec-20. I wasn't successful as I started having my old PMR symptoms after a month. So back to 5mg where I stayed for a long time, with a few sick day exceptions. Starting 26-Oct-22 I started again on a DSNS taper to 4.5 and this time I'm doing well. So I'm starting 2023 off on 4.5mg. Thanks to the excellent advice from DorsetLady and PMRpro and others I think I'm finally getting the hang of what is a flare, what is too low a dose, and what is my adrenals stuttering. Thanks all. 🙏
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.