This odd symptom appears to be worsening, my feet are scarlet, dry and they burn disturbingly at night. My heels hurt if I put my feet up and have any pressure on them. Just the edges, walking is ok.
I used to put this down to Psoriasis but now I'm wondering about peripheral neuropathy or some forms of Vasculitis. Not sure about my heels, they look a bit swollen, not painful enough for heel spurs.
I don't drink and I'm not diabetic. Is this another pesky side effect or have I got something else?
Any body else had it or got it?
Many thanks!
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SheffieldJane
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Oh, there's definitely a thing that does this and there was a post recently. Hoping someone will come up with it again. Meanwhile I'll try to look for it.
When will you get it checked out Jane? If it's neuropathy, youll need treatment of some sort to stop the progression.Hopefully, it's vasculitis and can be treated with pred.
If it's not one thing, it's another with this PMR/GCA!
There thing I was was thinking about was Erythromelalgia. However, this symptom can mean other things too that definitely need addressing, so do get this checked out. Some example here if you need convincing
As SnazzyD said, Erythomelalgia can cause some on the symptoms you are complaining of. I recently heard of someone with it. Just coincidence. I'd never heard of it before. I think I found out about it on health unlocked.
I had this too, every night around 10 and had to cool my feet down before the heat spread through my body. I now get it far less and am quick to remedy by cooling my feet (our floors are tiled so normally placing them on the tiles will work)>
I am not looking forward to when the woodburner is lit (so far we've managed without)....I know I will be overheating again including the burning feet.
Oh and, in bed, I have to make sure my feet are outside the duvet.
I occasionally get burning on the bottom of my feet in bed and have to stick them out of the bedclothes. They don't look red at all and are not painful to walk on. I just put it down to age (70) and getting hot and bothered.
My feet looked very red as if I have paddled in red dye. I noticed my palms burning to a lesser extent. I put plain ointment on them and kept them out of the duvet which seemed to help. They look normal today, stinging a bit really.
Thank you for your responses. It was particularly bad last night. I dread going to the GP with a new symptom. They always seem to view it in isolation when I feel sure they are all linked to PMR or medication.
I'd already thought erythromelalgia before reading all the other posts - possibly unusual with PMR but it is another rare disease! If you google it you will get pictures to see if it matches.
I have burning feet and my hands x I walk around bare footed as I can’t cool them off x
I do get hubby to get a bucket of freezing water and stick them in to cool them x but when dry they are hot again x I was told it’s because of the steriods x I am 60 mg again x
I wanted someone to tell me that because it makes sense.
However if you google it there are some nasties that it could be so you and I need to take a deep breath and tell the GP - there is a warning about treating it with ice . Mine only happens in bed, along with a blocked nose and a dry mouth. I've worried about Sjogren's. It took so long to get a PMR diagnosis that I have a real dread of opening another search out. Ointment the consistency of Vaseline and putting my feet out of bed helps. But is all this adding up to something?
My first auto immune disease was Graves Disease (1986) complete with Thyrotoxicosis and exopthalmic goitre, treated with Radio- Iodine and now Thyroxine. I never think about it now but burning feet are a symptom of Hypothyroidism. It seems that you suppress one auto- immune disease and another pops up. I wish science understood this better. I take part in every research study I hear about.
I have the same exact thing with my heels. If I rest them on anything they burn and hurt. I had to cur holes in the foam matress to sleep. Really frustrating!
I have just read about your feet, Jane. Mine go purple and throb too and for a long time I was convinced they were a big issue in all this but no-one has really worried about them. The pulses have been checked several times, though and been okay. Reynauds has been suggested and runs in my family it seems sadly. The feet were the worst certainly and never quite go away, but I think I have got more accepting of them! I still cant bear heavy duvet or anything resting on my toes. I put them up when sitting if can and have discovered wearing knee length socks with silver in them helps in cold weather! Given up anything but very comfortable flat shoes. Always used to walk barefoot, soles too sensitive now but in the scheme of things mostly just accept them now I am afraid. First year of PMR/GCA had Reynaud symptoms in hands and numb fingers a lot too and discovered gloves with silver which seemed to help. Last winter that was better but I never let either hands or feet get too cold if I can help it. Do mention it when you get your scan etc though, checking the circulation is probably a good idea. What a business this all is! Sun is shining here today though and I am going for a good walk. They still work thank goodness.
I used to get white fingertips before I took Pred, that I assume was Raynauds Syndrome. These things like Psoriasis in my ears and feet disappeared when I was above 10 mgs of Pred. All creeping back now.
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What to do when I need up my dose.
Worsening burning, restless, pins and needles in both feet and calves - is this related to the prednisolone, PMR, or something related? 
Sore feet
