From my previous posts you will know that I have had various side effects from meds, low B12, adrenal insufficiency, awful gerd, zombied, shaky hands, wiped out etc. all after I had recovered from a pulmonary embolism.
Thanks to doctor eventually listening to me and all the information from DL PMR pro and others I am sreing greay progress.
I am posting this for others on the PMR journey as I know how much it helps to read of others' experiences.
Good news is that most of these problems have been sorted and I have gone from being absolutely zombied and feeling that I would never be my lively, active normal self again to having a clear head, energy, less hot flushes and a good percentage of 'feeling more myself' days. The turnaround started gradually early Sept. At this point I was on 6.5mg as I had to abort the drop to 6mg mid August. As I had been given a second lot of 6 B12 injections in early August I put the improvement down to that. I really did not appreciate the symptoms of low B12 are much the same as hitting the lack of cortisol wall!
I am now pretty sure that the dropping pred was letting my body know.
Now I have reached the point where I am feeling a lot better most of the time, I am keen to start next 0.5 slow drop. One thing worth noting is the fact that even on bad days I would have what I call light switch hours starting early evening, when I would feel fine.
Still same now when not on a good day it all mproves as the day goes on. Anyone have an explanation to this?
I am having the autumn booster tomorrow...against my better judgement as the jabs have upset my pmr in the past.
So there is a light at the end of the tunnel. Take heart. I am hoping to be back on my (electric) bike soon.😀.