OCT scan at opticians and brain clot: Recently... - PMRGCAuk

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OCT scan at opticians and brain clot

Rache profile image
46 Replies

Recently someone complained about being charged £10 for an OCT scan at a well known opticians. It was certainly worth the money for me. The optometrist noticed changes from my previous annual scan, some swelling of the nerves and a slight bleed. She advised me to go to A&E to have it checked out. After some tests including a CT scan with dye, they found I have central venous thrombosis. I am in hospital being monitored further and having blood thinning injections. Apart from an unremarkable sinus type headache around my left eye, I was unaware there was anything wrong. I could have had a stroke, lost my sight or worse! I am very grateful to the optometrist who was very knowledgeable and diligent.

The causes are uncertain, it can be a history of clotting or use of the contraceptive pill. When I looked it up, there was also some mention of vasculitis so I was wondering if it could be linked to PMR or to taking prednisilone?

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Rache profile image
Rache
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46 Replies
DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

Well done your optometrist, and all my best wishes for the future…🌸

Rache profile image
Rache in reply to DorsetLady

Thank you DL

herdysheep profile image
herdysheep in reply to DorsetLady

Hear hear

SheffieldJane profile image
SheffieldJane

wow Rache thank goodness for that. I hope you continue to do well. I wonder if it is Giant Cell Arteritis linked? This is why I go every 6 months. It costs me £60.00

Kendrew profile image
Kendrew in reply to SheffieldJane

Me too. Regular 6mthly checks too.

in reply to SheffieldJane

I go yearly and have the full scan that cost me £70....weird how they all charge different prices. Not sure the £10 one covers everything though. But for that to be picked up was brilliant.

piglette profile image
piglette

That is money well spent. People often do not realise how lucky we are to get so much offered us.

Rache profile image
Rache

I have asked that but the consensus is that it’s not related to GCA. Thanks for your good wishes Jane. I have an annual free check, just paid for the OCT scan. May go twice a year from now on, that’s if I survive this!

SheffieldJane profile image
SheffieldJane in reply to Rache

please let us know how this goes for you. 🌺

Rache profile image
Rache in reply to SheffieldJane

I will thanks Jane

Josie-Anne profile image
Josie-Anne in reply to Rache

Hi Rache,

I get a free check up but also get a free OCT scan to because I can’t work, is it worth inquiring too? Just a thought 💭

PMRpro profile image
PMRproAmbassador

The eyes are a window on your health - the optometrist can spot signs of a lot of things!

in reply to PMRpro

My hubbys diabetes was picked up after an eye check up. So important to get check regualarly. And now he has Macular Degeneration too. However, no eye in jections for months and months, so seems all is stable at the moment. One good thing going for the poor man !! Can't wait for the 27th when he goes in for his first hip op. Looking forward to a break to recharge before all systems go again once he's home.

Rache profile image
Rache in reply to

Glad your husband’s problems have stabilised. Not long now until the 27th! I can understand how much you’d appreciate the break. Sending you all good wishes 🌷

in reply to Rache

Thank you so much. Feeling a little down in the dumps today. Get that from time to time, physically and mentally. Been taking 6mg for a month now having flared on 5mg. So tomorrow I'll start 5.5mg again and try again in a months time at 5mg. Was hoping to be on 4mg this month when I see my rheumy on 19th, sadly, not the case.

Anne

Rache profile image
Rache in reply to

Don’t be too hard on yourself. You have a lot on your plate. No wonder you have low periods. I am on 5mg although I had got down to 3mg this time last year. A bit disappointing but I’m not trying to reduce while I’m in hospital.

in reply to Rache

Thanks again, Hope you're out of hospitl soon X

ChrisinNam profile image
ChrisinNam in reply to

Ditto!!

Rache profile image
Rache

I’d heard they were the windows to the soul but now I know this too!

PMRpro profile image
PMRproAmbassador in reply to Rache

Diabetes, even brain tumours can make their mark amongst other things.

123-go profile image
123-go

What a good thing you went for the scan! May have been me recommending but whoever it was we know for sure from your experience that it's money well spent. Best wishes for the future 💐.

Rache profile image
Rache

Thanks 🌷

Sophiestree profile image
Sophiestree

wow! Did you go just for a regular checkup? Or because you thought something wasn't right? You must be relieved either way that they have found all this in time. So scary.

I hope everything goes really well for you, I go every six months and never know what checks I'm having so will ask next time if it's an OCT. I just pay and say thanks see you in 6 months.

Rache profile image
Rache in reply to Sophiestree

it was a regular check up although I made the appointment a bit earlier as I’d had a particularly large long floater. Not every optician has an OCT scanner which looks at the back of the eye. Maybe worth asking.

Sophiestree profile image
Sophiestree in reply to Rache

amazing... floaters are my biggest issue, bang in the centre, my optician says there is nothing I can do. There is some procedure but he didn’t advise it. Sometimes life is just one big blur. I will certainly ask him when i go next time.

Rache profile image
Rache in reply to Sophiestree

Yes I think it’s quite an invasive procedure. You have to hope they’ll lessen with time I suppose

PMRpro profile image
PMRproAmbassador in reply to Sophiestree

I've had one in the middle of my left field of vision for about 20 years, since about the start of PMR. I noticed early on that it improved with higher doses of pred but returned to looking like a greasy finger print on my specs at lower doses. Gone altogether I realise after 3 years of 15+mg pred!

Rache profile image
Rache in reply to PMRpro

That’s another advantage of pred

PMRpro profile image
PMRproAmbassador in reply to Rache

Might return now it's going down!

Sophiestree profile image
Sophiestree in reply to PMRpro

Funny, I thought it was the pred that brought them on. They are a pain as bang in the centre. At first the optician said they tend to go after six months which I thought was tolerable, 18 months later..... urgh

add those to the cataracts apparently I now have it's a nightmare.

PMRpro profile image
PMRproAmbassador in reply to Sophiestree

Maybe but I definitely had mine long before pred. Mine is at least only in the left eye. Cataracts coming I'm told ...

Whitner profile image
Whitner in reply to Sophiestree

Yes I had mine way before going on prednisone but I don't think mine have gone away, I've just gotten used to them. The only time they really bother me is when I see a little dark spot in my peripheral vision and think I've got a gnat flying around my head :)

Koalajane profile image
Koalajane

it makes me realise how lucky I am to have an OCT scan every 2 months for my macular oedema. I hadn’t realised it can show so much

Rache profile image
Rache in reply to Koalajane

I hoped it would alert others

powerwalk profile image
powerwalk

oh my eye check is due and i intend getting that scan too, i got it the last time. Best of luck with it all, let us know how things go. Worrying for you til its sorted.

S4ndy profile image
S4ndy

Well done that optometrist! It was my optometrist that sent me off to a specialist clinic and saved my sight. It wasnt the same as yours but all the same if I hadnt been seen I could have lost sight in my right eye! I think £10 is very little to pay for that!

Josie-Anne profile image
Josie-Anne

hi Rache,

Glad you got checked out and that your ok, I have told my doctor that I had a smalll bleed behind my right eye when I got my eyes checked last year with the opticians but was told by them that it would go away on its own accord. I get headaches like my head is going to explode and get blurred vision, when I take an aspirin it helps me sometimes as it’s a blood thinner but I all I got told was that I could be toxins that my liver can’t deal with so they go to the brain.

Did you get any type of headaches or blurred vision if you don’t mind me asking 😊

Rache profile image
Rache in reply to Josie-Anne

No blurred vision and just a slight sinus type headache over my left eye. It’s the type of headache I’ve had for years on and off so it may not be connected at all

Josie-Anne profile image
Josie-Anne in reply to Rache

ok thank you I get sinus trouble all the time because I fell and have got a crack and a fracture in the sinus wall and keep getting sinus infections 🙄

Rache profile image
Rache

Agree!

Tiggy70 profile image
Tiggy70

So sorry to hear about your eye problems but thankfully you are being looked after. At my last eye check up I was offered an OCT scan. It was described to me as an MRI scan on your eyes. I think it was £10 well spent. Our sight is so precious. Hope all goes well for you, 🌸Tiggy70.

5lupins profile image
5lupins

hi Rache, sorry to hear you are in hospital.

I will never forget the kindness you and others showed me

When I was unwed.

Sending you a big hug and all my love. Jen 🌸

Rache profile image
Rache in reply to 5lupins

Thanks Jen, that’s very kind, hope you are doing ok x

bussell profile image
bussell

Do hope everything is progressing well and under control. Top marks for the OCT screening. By coincidence on the day you posted your experience I received a reminder from my optician about my annual checkup, and included was a leaflet offering me OCT. I'd never heard of it. Will definitely opt to have this done! Thank you for telling us about it!

Rache profile image
Rache

Pleased that it has been useful!

Greytree profile image
Greytree

Thanks so much for your post and the comments. I had gotten a notice from eye doc about needing a visit. Will do ASAP now.

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