Sick of this

[Logic]

hi all

I am down to 1mg from 15 in October after a second got round with PMR. Having a terrible time so

[DorsetLady PMRGCAuk volunteer]

If you’ve reduced to zero in 11 months no wonder you feel rubbish - I know you had PMR previously - in fact I doubt it ever went away…

This time around can you recall the lowest dose you felt okay? If so I would suggest you need to go back to that -get things back under control, and then reduce more slowly.

Guessing your doctor has given you the taper regime -well sorry, but it’s not working so a rethink required.

Whether you are feeling rubbish is due to your PMR or your adrenals not working, or more likely a combination of both is really immaterial -you need to get it sorted -please speak to your doctor asap.

[PMRpro Ambassador]

Not surprised you feel rubbish having gone from 15mg in October to 1mg now. Pred cures nothing, it is a management strategy that you will need as long as the underlying autoimmune disorder is active. And it isn't very often you need that little after less than a year - half of people need more than 18 months to get to 5mg and very few are off pred in a year.

[LemonZest11]

Hi Logic, please listen to DorsetLady and PMRpro, they actually know. My blood pressure is always high at the docs but normal to low at home. Buy yourself a blood pressure machine, relatively inexpensive and a great investment, and test your BP at home.